i had repair surgery 8 years ago. since the surgery i have been bedridden. i am 57 yrs old. doctors here say it brought out muscular dystrophy, which i have never had. they say it made collagen vascular worse as well. they say i have to learn to live with fact i will remain bedridden. i was never told this could happen or i never would have had the surgery! this has been hard to accept considering i was active before this surgery.
is it possible they are wrong? i have hard time walking across a room because i can not breath! it is like i am being suffocated. i have to lie down and wait for my breathing to come back. i feel this is causing my muscle weakn ess. isn't it true that muscles need oxygen to survive?
do you feel i need to just accept the diagnosis? isn't there any hope..anywhere to turn?