To start this coversation off I would like to let you know that I have been diagnosed with a 4mm non-functioning pituitary tumor. The 40 sum doctors I've seen, believe that I just have anxiety/depression, chronic pain disorder and there is nothing they can do to treat the tumor, as they believe it's not causing any of my symptoms. My symptoms are (for me being a 30 year old male); anxiety, depression, chronic debilitating fatigue, headaches like you would not believe, unable to wake up in the morning, but can't sleep at night...it's as if my cortisol levels are completely backwards. (Cortisol levels are supposed to rise in the morning so you can wake up. Then continue to rise so you can have a good day. When it gets to be later in the night your cortisol levels start to go down allowing you to sleep.) I'm tired all day, but after 8:00p.m. each night I am wide awake. I take so many sleeping pills to try and sleep, but nothing gives me a consistent sleep. I see two spots out of the right side of my eye (always in the same spot) and lately I'll have episodes where my left eye will completely go dark and I become disoriented. I have trouble walking around things as I have to take an extra step around the object so I don't hit it. I can go 6 days without having an appetite and not eating, but yet I gain ten pounds. If I eat for 6 days non stop, I will lose weight. I have so much pain behind my eyes that it actually feels like someone is behind them trying to push them out. When I start to get a little fatigued, my left eyelid droops. I often have palpitations in my heart and my heart flutters 3 to 4 times per day. I've also developed some type of low or high blood pressure. As I stand up, all of the sudden my heart and the blood in my body just drops and I start to faint or pass out. I can rarely get an erection and when I do, it's very hard to maintain. During the act of sex, my body shakes, my arms and lakes shake so bad that I can barely continue having sex and sometimes I actually have to stop. While having intercourse I sweat as though I have just got done running a marathon. I shake or tremor when lifting even the smallest thing such as a half gallon jug of milk. I almost always have diarhea and have had maybe two solid stools in the last couple years. I sometimes have to change my shirts 2 or 3 times a day because I sweat so bad. I cannot tolerate the cold, but I also cannot tolerate the heat. The worst takes place at night...I will be sweating like crazy under the blankets, but if I take them off I get cold.
Here are my two main questions I'm hoping anyone on this forum might be able to explain and help me out with:
1. Why when I take a 10 mg Ambien during the day (which my doctor wanted me to try) do I no longer have
anxiety or depression and I am no longer nervous, I get my confidence back and I no longer sweat like crazy
when shoveling or racking something up?
2. Is there anyway doctors can inject sometype of dye or something indirectly (by drinking or through an IV) or
directly (which I don't know how they do that) into your thyroid, pituitary, hypothalmus, adrenal glands, etc...,
that would allow them to know if one or the other isn't working properly.
Here is the list of medications I've been tried on and some of them I've been up to the highest dose allowed by law and I've tried them all more than once. I would try just taking 30 mg of cymbalta for 2 months and it didn't work, so I tried 60 mg of cymbalta for 2 months and it didn't work, so they tried me on 120 mg of cymbalta for 2 months and it still didn't work. (That is just one of the examples that I've tried every dose available and tried it many times). Alot of these medications I've been on four or five times and even mixed with other drugs. After awhile, wouldn't someone assume that the anxiety, depression, etc... are secondary causes to something else. I've never had a thyriod scan or any dye put in to see if it could be my pituitary, hypothalmus, thyroid gland or something else that is not working or misfiring.
1. Paxil (25 mg, oncer per day, had a bad reaction)
2. PaxilCR (25mg, once per day)
3. Xaxax (1 mg, take one tablet daily)
4. Zoloft (Various pill sizes, the most I was ever on was 250 MG)
5. Risperdal (1 mg, take 1/2 to 1 tablet each day)
6. Lexapro (20 mg, taken once a day)
7. Clonazepan (1/2 to one tablet daily up to 3x daily)
8. Wellbutrin (I believe I was taking like 150 mg once a day)
9. Seroquel (Unsure, but I believe the largest dose I took was maybe 100. Used these for sleep)
10. Zyprexa (10 mg, take one tablet daily at bedtime)
11. Buspirone (15 mg, take one tablet daily at bedtime)
12. Clomipramine (50 mg to take 2 tablets at bedtime, sent to ER following morning, as I couldn't
walk, talk or function).
13. Lorazepam (2 mg, one tablet at bedtime, then take 1/2 to 1 tablet every 6 hours as needed)
14. Cymbalta (got up to taking 60 mg 2x per day or 120 total)
15. Ativan 0.5mg, up to three times per day)
16. Invega (6 mg)
18. Alprazolam (0.5 mg up to four times per day).
19. I was even told to try taking 10 to 20 mg of Ambien(Zolpidem) in the daytime to see if it helps.
20. Abilify (5 mg, once at bedtime).
21. Prozac (40 mg 1x per day)
22. Doxycycline (100mg 2x per day for 45 days)
Below is a list of other medications they have tried to figure me out:
25. Testosterone injections
26. B12 shots (I was at 253 total and after 4 shots I was up to over 1900 so I was told to quit).
27. Donate blood as I was told I have high iron.
30. Toprol XL
34. St. John’s Wort
35. Nasal rinses (2-3 times daily)
42. Cytomel (5 mcg, 1-2 pills 3 times per day = 30 mcg, however I only got to try 5 mcg, had a
bad reaction with Paxil and stopped everything)
43. Taurine (500 MG, taking 3 throughout the day)
44. Nasonex (10g, 2x per day, 2x in each nostril)
45. Flonase (50mcg, not sure how many times per day)
46. Took vitamins B12, B6, Multivitamin, Vitamin C, Vitamin D, multi-vitamins, Lysine
49. I also took something for high blood pressure