I'm scared and keep saying to my boyfriend when it happens that I want to die, I just don't want to live like this when any minute it could happen again and when it does it is so bad I cannot tolerate it. My heart feels like it is under soo much pressure for soo long. The last time I was admitted they thought I had a heart condition so now I have to have more tests on my heart, but initial tests I've had in the past couple years show my heart is fine. It goes to show how severe I am for the medical team to think I had a heart condition
Tests so far;
- Gastroscopy x 4
- Colonoscopy x 1
- Multiple blood tests (FBE, Liver Function, ESR, Vitamin B12, Iron, IGG Subclass, TSH, Porphyria urine test, stool ova/parasite test x 3, blood cultures (standard and fungal), Quantiferon Test, Bordetella pertussis serol, mycobacteria culture, sputum mcs, c reactive protein, HCG, Urea, Elec and Creat, Folate Red Cell and Serum, Glucose Random, Haemoglobin A1c, Lymphocyte Subsets, Syphillis Serology, Vitamin D, HIV, Packed RC Volume, Glucose Fasting, Tryptase, Helicobacter Urea Test, H.Pylori Breath test, Factor IX, XI, XII, Group Screen and Hold, Blood Film Review, Factor 8 studies, Holotranscobalamin, Platelet Aggregation, Anti-T'Glutaminase, Immunoglobulin E, Lupus Anticoagulant, RAST 1 & 4 Allergens, Prolactin, Calcium & Albumin, Magnesium, ANA Screen & Titre, Rheumatoid Factor, CMV Igg Serology, Coagulation profile, Hep B Core Ab, Hep C Antibody, Porphyrin, Lipase)
- Stool tests for parasites/ova test x 2
- Multiple chest x-rays
- Ultrasound Abdomen
- Brain MRI
- Sputum tests
So my brain which is constantly analysing has become paranoid that from bulimia I have damaged my stomach and as a result I have severe gastritis or inflammation/leaky gut which is causing "toxins" from parasites to release and cause me such intense symptoms. I really don't know what to believe or what to do.
I am seeing a psychiatrist but no diagnosis yet at all. I have tried SSRI's in the past but react badly to them.
I have spent hours trying to find people with my symptoms, but can't find anyone which is making me worse. It's scaring me to death because I am convinced this will kill me and I will be a victim of a "misdiagnosis" or a "rare illness"
My mother thinks it is psychological and that it is beyond me. That it is more like Dysautonomia, and that my autonomic nervous system is creating this havoc in my body and that it's not medical.
I am stuck and I need help and I am even feeling anxious about the answers I might get because I don't want to hear that it is something I suspect when doctors don't believe in parasites causing such severe symptoms or candida but I can't take anything for detox because it nearly kills me every time without fail. Prior to my candidiasis diagnosis and googling, I never experienced these symptoms. Deep down I am hoping that it is all psychological and not medical but I want to know either way so I can treat it! I'm desperate and would really appreciate all your help and advice.
Once the attack passes the symptoms dissolve and I am ok again. My mucus comes back, the nausea passes and my heart rate reduces. I don't have that unwell feeling until the next attack.
Have you asked your Medical doctor for a referral to a therapist or a therapist who is running a group for anxiety sufferers....In a group, you will hear many stories and gain some ideas about your own recovery. I do wish you the very best of luck
Anxiety can come with a very long list of possible symptoms and you do have many of them.
At first I was thinking an ulcer but if you've had several scopes done it would have shown that.
Can you say what meds you've taken for your anxiety and depression? And also, how much time did you give them? The first week or so on a new med can be kind of hard. Nausea, headaches, feeling a little strange. If you hang in there though these side effects usually do go away.
You said Xanax did'nt help but there are other anti anxiety meds you can try. I think it would be a good idea to talk to your Dr about a long acting anxiety med so you'll stop having the attacks.
I feel so bad for you because I know what anxiety feels like, most of us here at this forum do. I understand the nausea and other horrible symptoms when a panic attack hits.
We're here to listen and help anyway we can.
Thank-you for your reply. I have tried Zoloft, Effexor (severe reaction - blacked out my blood pressure dropped and I felt incredibly unwell), Lexapro, and Citalopram. The SSRI's caused severe bruising all down my legs, I was made to discontinue use. My heart rate was also increased to higher than usual and I felt like I was high. I also tried Moclobemide but noticed no difference.
I have tried diazepam, xanax, valium and clonazepam. I was also give one dose of Olanzapine in the ER as they thought I was having a psychotic episode. I wasn't, but it knocked me out completely for a few hours.
It's horrible :(
You're very welcome. I just wish I could be of more help to you.
I see that you've tried alot of meds. I'm wondering if you would be alright if you were started on a very low dose? In my opinion, some Drs can start their patients on to high a dose, they get terrible side effects and quit taking it.
I read over your post again and I don't see that you're in any kind of therapy. If you're not, I would highly recommend it. Find a therapist that does CBT. Many people do very well with that kind of therapy.
OMG, I am so sorry to hear of your pain. Recently I have had an issue with not being able to sleep (perhaps 1 or 2 hrs a night) and while this has been bad (for me) I have had none of the issues you describe, nor for the length of time. I have nothing to offer you in the way of solutions or advice, but I will say this: You are a very strong person to have gone on this long and while I am sorry for your pain I have to stand in awe of your strength. (I myself have been considering a much less honorable solution.)
You truly are a strong person and I wish you the very best of luck as it really may take that before you find your solution.
I have had many things you had for some amount of time. So, I feel that I should share it with you.
The thing where the mind wanders off to many unconnected thoughts which are doomed. I have had it. It felt terrible. It became OK for me. So you ll also feel well and all these will go. You will lead a happy fruitful life. I think u r only my age if 87 in Monika87 is your dob.
The episode on diarrhea and vomiting is related to repeated food poisoning. Change your place. Move. Shift your job. Go to a different climate. It ll stop.
The body is very good in curing itself, in attacking the invaders. If you really want to know if you are being treated properly you should have a doctor degree yourself. Since that is not possible, the next best thing is to search for a good doctor. Not hospital. Doctor. One who many people vouch for. I know a doctor who gave no medicine to my friend once he found out what the problem is. Simply nothing. He said she ll get well on her own. And she did. Once you found your good doctor. You'll be okay.
The cutting edge is not available in Google. The cutting edge, the depth of knowledge in technical matters is available inside institutes and companies only. Just try googling out something specific in your field of study. U won't find it.
If you need emotional support you can watch in YouTube with search term sadhguru. It helped me.
Your body is the essence of natural selection of ten thousand lifetimes. I m sure it can handle what is thrown at it. When you feel terrible try this. Imagine that you are not undergoing this but watching from above what you are undergoing. That distance will help ease the pain and suffering. Bless you.
The symptoms you have described sound remarkably like it's your liver. Unfortunately western medicine can't help with this as what you really need to do is to detoxify. The location of the gnawing pain you described and the other symptoms eg lack of appetite, nausea, coldness, sleep disruption, these will all disappear when you start to work on your liver. Also anxiety is a sign of problems in the liver too. You must avoid pharmaceutical drugs especially paracetamol etc which damage your liver. The symptoms will be most prominent when you consume foods high in fat, caffeine - especially filter coffee, and alcohol. I would also avoid dairy and wheat, so try out a vegan diet perhaps with some fish but no processed carbs. Too much chocolate can also put a burden on your liver and can worsen the anxiety. For the anxiety I would recommend meditation and fermented foods which are high in natural probiotics such as sauerkraut, it's quite simple to make your own. Also, if you have colonics this will clear out your bowels and remove any toxins in your bloodstream which pass into the brain which could be causing the anxiety too. Good luck ! x
You have a parasitic infection. I had the same thing. Go to humaworm.com. it helped a ton for me.that's what your attacks are most likely from
I know this looks long and may seem weird to you but just read it please, it's the truth. And can help in mire ways than one. Just stick with it. You've probably spent a lot of time reading worse stuff. So please.....
You should go get prayed for at an apostolic Pentecostal church and can be healed. Many people have been healed before from various diseases, sickness, and life threatening problems. There have been people who have been in wheel chairs or blind. And after getting prayed for the one in the wheel chair stood up and the blind was made to see. I have faith that god can heal you just like that.
This is not a lie these things truly happened and can for you. God said all things are possible to them that believe. He also said if any man feel sick let the elders of the church lay hands on them and pray for them. And they shall be healed. God will always keep his promises, just trust in him. He also said ask and ye shall receive, knock and it shall be opened unto you. He didn't say maybe ill heal you he promised that he would and I believe he will if you really want him to and let him.
The bible says ye receive not because ye ask not and it also says to make our requests known unto god (prayer) he will meet you there and he will help you in your time of need. He says he will never leave not forsake you. Just give your life over to him. How to do that is Acts 2:38 KJV repent and be baptized every one of you in the name of Jesus Christ and ye shall receive the gift of the holy ghost. This promise is unto you, your children, all those that are afar off, even as many as the Lord our god shall call. Evidence of receiving the holy ghost is by speaking in other tongues as the spirit of god gives the utterance like Peter did on the day of Pentecost in Acts chapter 2 KJV (king james version).
This is for everyone, no sin is too great for god he died for all to be saved. God did it for me and ive never been happier and ive done some bad things in my life such as drugs and drinking. The bad part was that I knew I was wrong but still did it. I was born and raised in the message of Acts 2:38 but left the church and got really bad. But still then god never left me and brought me to my knees where I gave my life to him and he re filled my with the holy ghost as I spoke in tongues. Since then ive been living the best life I can live and happiest I've ever been.
He did it for me so I know he can do it for you. His promise was to all. Gods blood can wash away your sins and sickness. So don't lose hope just put it in god. He has healed many others and can do it for you. So please check into this. Into apostolic Pentecostals. I know people may think I'm wierd but god is real and can do this for you.
Not all churches believe the truth. The bible says not to be carried away by every wind of doctrine that comes your way. Apostolic Pentecostals have the truth though and believe every word in the bible. So don't just go to any church. If you truly want to be healed come to a church service of this religion and do as the bible says.
I promise you if you do this you can be healed. Just believe for the bible says walk by faith not by sight. Even if your mind tells you no, look deep down into your heart and you will feel that desire that feeling that says yes. This it's god knocking on the door of your heart just open up to him give your life to him (Acts 2:38) and you won't regret it. Me and many others never have. Just give it a try what other hope so you have when the doctors have thrown in the towel and you've tried so many other ways? There were many stories in the bible such as this and god healed them. The bible says he is the same yesterday today and forever. So please just give it a try God it's able. He is the creator of all things so what is this compared to saying let there be light and there was light. God is willing, if your willing to take the first step. He won't force his way into your life but he stands at the door and knocks as the bible states. So just let him in, why not give it a try? You well never regret it. He will truly help you see and open your eyes.
Have you ever thought there has to be a better life? Well Jesus is it. The bible says we were created by him and for him. So how can we be happy without him? That is why you don't see very many happy people these days because they are lost and need saved. For this reason god came and gave his life on that cross. People just have to let him help otherwise he won't because he gave us freedom to choose and wants us to choose him not him forcing us. That it's oppression not love, and god it's ask about love, he is the description of love. Who else would give their life for billions of people who hate, are against them, or reject them? That it's what God did for us.
In conclusion all I have to say is just give it a try, have faith, and trust in god. Also get to know him by talking with him (prayer) he likes that.