Hi,
I felt like I was reading my own list of symptoms down to the miscarriage. Please go see a rheumatologist. I think after reading your symptoms that you have Psoriatic Arthritis and Fibromyalgia. Have you considered Lyme Disease? I have been diagnosed with Osteoarthritis, then Psoriatic arthritis and fibromyalgia, I have a new rheumatologist and he has now diagnosed me with Osteoarthritis and Fibromyalgia. Good luck with getting some answers but do research fibromyalgia as I think you will find many answers.
Hey I am 24 and suffer from most of the problems you just listed. There are only actually a couple of things I haven't dealt with yet. I understand your fustration. I have been dealing with this that I know of for 7-8 years, but has been thought that it may have been going on longer. Even as a young adolescent, I always wanted to be in bed early as possible. Even as a teen, friends gave me a hard time because I wouldn't stay out later than 8 or 9 at the latest. Hope you can get some answers. I may have found a doctor that can give me some. I will find out Monday. Stephanie
Don't stop testing. Lupus and RA and others can take time to show up in your blood. Mine is negative one time and positive the next.
I was tested for Lupus in 2000 after a weird rash. I was told it was negative.
Oh my, you've certainly been through a lot. Have you ever seen a rheumatologist? You definitely have one or more auto-immune issues going on (auto-immune inner ear disease, maybe Lupus or RA or ?) and quite possibly fibromyalgia on top of that.
You need to have a Lupus panel drawn (tests ANA and other related blood tests) and a complete work up by a rheumatologist. I really hope you can find a good one and get the attention you need and deserve.
Tests and History
Tests done in the last 2 years
Colonoscopy (2 times)
Endoscope
Barium x rays
ulcer lemon drink test
CAT scans on head for ears
xrays
ultrasounds of abdomen
Blood work - all the basics covered (one smear taken at peak of attack showed inflammation and back to normal on a repeat test)
Electrode test for carpal tunnel
History
Age 9 Surgery on eye muscles in both eyes
Age 10 Juvenile Arthritis
Age 12 Tonsils out
Age 13 First stomach attack
Age 16 Car accident
Age 18 Arthroscopic knee surgery
Age 19 Cody was Born (premature labor at 32 weeks held full term)
Age 20 ER trip for stomach
Age 21 Santana was born (premature labor at 21 weeks held til 32)
Age 23 Diagnosed with IBS after no other conclusion could be made
Age 23 Molar pregnancy terminated and treated with Methotrexate
Age 24 tubal ligation
Age 25 Appendix out
Age 32 Tubal reversal
Age 33 Miscarriage at 10 weeks. Massive hemorrhage
Age 35 Kenny was born (premature labor at 30 weeks held to 38)
Age 35 15 month “IBS attack”
Age 38 -8 week Stomach attack no conclusion. Increased inflammation in bloodwork
Stopped smoking after 25 years on Jan 21/2009
no drugs other then B/C and tylenol unless it is prescribed.
NOT a heavy drinker. Drinking causes diarrhea so I avoid it