Thank you so much! Yes, I did ask to get on their cancellation list. This really *****. I had heard that Hepatitis C could cause a certain type of arthritis, and I was so happy when the tests came back negative. Well, my hands are turning into treeknob claws right before my very eyes. I swear it seems like it gets visibly worse every day. I hate this!! I still feel like I'm 18, but my body doesn't seem to agree. Sigh ...
It isn't at ALL uncommon to have what's called sero-negative RA, which means you have symptoms but negative blood tests. A good rheumatologist will take into account a broad range of evidence, not just bloodwork.
I don't have scleroderma, but I do have RA and skin issues can be part of the, er, "fun." :/ Not to sound like a commercial, but I've found a few products that help:
- Vaseline Healthy Hand & Nail formula; comes in a smaller, pinkish tube
- AmLactin lotion
- Zim's Crack Creme (I know, weird name, but I love this stuff)
- Any of Burt's Bees products for hands & feet. Esp. the lemon oil cuticle ointment, and the almond milk hand cream. I use my grandmother's old trick and apply the hand cream then a pair of cotton gloves when I go to bed. I know, sexy, but it works. :)
Keep in contact with the rheumatologist's office and ask if there's a list you can get on for if there's a cancellation. Call every day, if you must, to ask if there's an opening. Be polite, but don't give up. :)