I know it has been awhile, but if you are looking I hope you will post and let us know how you aare doing now.
Did you have your cheeckup appt with your doctor and was there decission oon aan LP?
I hope you are doing well and would love for and update.
take care, amo
good day bio,
I can see whyyou would be apprehensive about this having had fusions.
When you seee him too make sure you talk it all out. Mkae your list of questions and concerns so they get answered. That wway your decision is the best one for you.
I know so me of these things aaare hard ,even when you know they are the best for your health.
If he can not offer sedation and (i am missing mmy word now! ) the type that guides them when they iinsert the needle...you may want to ask for referal to somewhere that can accomodate your specific needs.
May be they could even offer for you to be put under not just relaxants .
Keep us posted what is happening. Be well, amo
My doctor who is treating me has only mentioned the lumbar puncture as a test if everything else has been tried (well the less invasive tests). So I am not booked to have one. I do have an appointment with my doctor which has been brought forward, so I am thinking maybe this test is what he wants to discuss... All I want to know is what the test is like before and after?? I'm really not looking forward to making the decision as to have it or not. As for my physique I am 5'3'' and only 7-8 stone. I've had a spinal fusion too which makes the thought of my back being touched and hurt almost unbearable :s the only reason I might consider a lumbar puncture is to try to ind a reason/treatment for my ataxia! As for why my doctor may want to do a lumbar puncture, to measure the fluilds which may help him come up with why I have ataxia and may lead to a treatment.
Glad to see you here.
I saw you post to another i nquire and you mention you have some type of Cerebeellar Ataxia.
Did your doctor say why they want to examine your spinal fluid?
I would ask their reason for the procedure. Maybe to rule out any infectious caused to your C.A. ?
Do you have a movement neurologist? ( many questions, i know!)
I have had two L.P., months apart, done sometime ago. They ran th em for dx'ing m.s.,, whiich my docs believe I do have. But I also have some form of C.A. unrelated to the m.s..
That been said, My taps were very easy and uneventful. Depending on the doctor , will depend how it is handled.
I happen having mine done by my neuro right in his office. He was very experienced and did a fine job. We chatted the whole time .He did not use the imaging they can use, like ex-ray to guide, but many places use that.
I would not want to offend, but a persons physique can sometime come into play. My docr just said it was easy for him that I am leannn and finding the right spot was easy.
When is it schedule?
It is completely within your right to know what their procedure ahead of time.
I lay on my side, He just numbed my back and I felt very little . After the vials were complete, I just had to lay still for 1/2 hour before I got up. We had drive n far so I lay in the back seat, then when getting home I rested on my back most part of a couple days. It was a good excuse to been pampered!
Fluids and rest.
My back was barely tender.
Drinking plenty of fluids, some people recommend caffene that may eleviate headaches after.
If you are feeling aprehensive, ask for something to calm your nerves (valium or such).
I hope this has helped some. If you have more questions be sure to ask.
take good care, amo