There are many, many parents like you with children who almost meet criteria for diagnosis. Certainly consider having him reassessed if you feel that the difficulties he’s having haven’t being adequately seen by previous professionals who assessed him. Perhaps the most important advice I can give you is that a diagnosis is just a label, not a solution. If he’s struggling in some areas, seek out services to help him in those areas. Things like poor eye contact, tantruming, gross motor, fine motor, and speech delays can all be addressed. It sounds like he’s already receiving some services but find more for him if he has challenges that his current services aren’t targeting. There are behavior analysts and therapists who have experience working with children just like your son and remarkable progress can be made. Treat each of his challenges individually and do your best to find services to address each of them.
Do i have valid concerns ? Am i just being paranoid -- that is how the doctors treat me as if I am paranoid or just over parenting -- teachers think i want something to be wrong with him -- i just want to learn how to teach my son better -- I want him to be able to feel like he belongs and that he is okay -- he notices he is different and i want to foster self confidence in him -- in his lil head and his lil heart -- i just really am lost trying to teach him stuff that comes naturally to me and doctor and teachers and therapist have not helped me ! please let me know your thoughts!
Dear concerned Mommy, I understand and totally relate to your concerns concerning your son. I am the grandmother of a 7 year old little boy who demonstrates many of the exact characteristics that you indicate are present in your son. My grandson has been diagnosed with autism spectrum disorder. However, in addition to the similarilies that the two boys share, my grandson is deaf, mute, has a sleeping and eating disorder, is severely developmentally delayed (cognitively functions are that of an 18 month old). He also has failed to intergrate socially and appears to be in a world of his own. He too is a sweet an lovable little fellow, unfortunately, he does not interact socially enough with anyone for one to realize just how lovable he truly is. Further, my grandson is a true miracle and blessing from God as he has never eaten food of any type a day in his life. Where it not for Pedia Sure, I shudder to think what would happen to him as it is his only source of nutrients. It can be extremely frustrating when you have one of these truly special gifts from God, and physician, therapist, etc., seem to have little or no understanding of them. Just no that you are not alone, if it is okay with you, I would like to list you as a friend and perhaps we can share in some of the interventions that we have experienced and the outcome thereof.
Good Luck and God will continue to bless you and your special little one.