Aa
Autoimmune Gastritis
I posted this previously in an attempt to place it with a Gastroenterology specialist. But it ended up in the general medical forum. I have Hasshimoto's and Autoimmune Gastritis with a hx of cancer. So perhaps it is better placed here:
I have just been dx'd with AMAG (autoimmune a. gastris) and two carcinoid tumors. 6 years ago, I had an endoscopy (with a colonoscopy) due to hx GERD. biopsies were taken and all that was seen was a "moderately thin" lining.
I'm at a teaching medical facility for my care (now and before). While I am sure I have expert GI docs, I am also concerned that history is not being taken well. It is as if the interventions are being put into place but the idea that I have digestive issues and I am not eating well (nor feeling well) just doesn't seem to be on the radar. Don't my symptoms matter???? It's a little disconcerting but maybe I'm just not familiar with the process. But it it taking a while to get this done (made appt last March, 1st endo in May, waiting for appt for 2nd endo). I just don't feel good nor am I able to eat well and I have no advice or care for it. I don't mean to sound whiny but if there is something I can learn, please let me know. I'm thinking of trying digestive enzymes.
The endoscopy found what I have told you about thus far. Carcinoids were biopsied of "at least .3cm [..and...] .5 cm" respectively and mitotic activity is less than 5%. A second GI MD will take out carcinoids with ultrasound and with me under propofol due to risk of perforation (I have EDS III...Ehlers-Danlos) and needing highest sedation dosages (Versid &
Fentenyl) during previous endoscopy.
Everyone calls these carcinoids benign. But I believe the story isn't complete until they are out. The first GI MD called them polyps and then the report said they were carcinoids. I asked the second MD if this was cancer and he said it was a matter of syntax. So my first question to you is IS A CARCINOID TUMOR A TYPE OF CANCER? It seems like if these are in the muscle of the stomach, it becomes more serious in terms of cancer. PLEASE TELL ME IF i AM CORRECT/WRONG.
I would also like to ask you about on going care concerning the gastritis. Does this mean I will eventually lose entire ability to produce acid and enzymes in my stomach? If so, is there any treatment usually administered (besides B12 shots) to help a patient digest food well? Is there anyway of turning around this disorder?
Lastly, I read where AMAG is rare and that there are 65 -117 cases in the US each year. IS THIS TRUE?
I have Hashimoto's. I read that is it common that AMAG occurs in such patients. If this is true, WHY?
Once the GI MDs do their work, is the AMAG something that the Endocrinologist monitors? I have so many specialists (2 endos for Hashimoto's and Vit D deficiency/hx osteomalacia, oncologist, allergist, 2 opthamologists for undefine r retinal issue,... and more). I'm rather discouraged to have yet another rare syndrome to find that I will be pushed around from specialist to specialist and not really have any solutions (which is very tiring).
Your advise and insight is appreciated.
I have just been dx'd with AMAG (autoimmune a. gastris) and two carcinoid tumors. 6 years ago, I had an endoscopy (with a colonoscopy) due to hx GERD. biopsies were taken and all that was seen was a "moderately thin" lining.
I'm at a teaching medical facility for my care (now and before). While I am sure I have expert GI docs, I am also concerned that history is not being taken well. It is as if the interventions are being put into place but the idea that I have digestive issues and I am not eating well (nor feeling well) just doesn't seem to be on the radar. Don't my symptoms matter???? It's a little disconcerting but maybe I'm just not familiar with the process. But it it taking a while to get this done (made appt last March, 1st endo in May, waiting for appt for 2nd endo). I just don't feel good nor am I able to eat well and I have no advice or care for it. I don't mean to sound whiny but if there is something I can learn, please let me know. I'm thinking of trying digestive enzymes.
The endoscopy found what I have told you about thus far. Carcinoids were biopsied of "at least .3cm [..and...] .5 cm" respectively and mitotic activity is less than 5%. A second GI MD will take out carcinoids with ultrasound and with me under propofol due to risk of perforation (I have EDS III...Ehlers-Danlos) and needing highest sedation dosages (Versid &
Fentenyl) during previous endoscopy.
Everyone calls these carcinoids benign. But I believe the story isn't complete until they are out. The first GI MD called them polyps and then the report said they were carcinoids. I asked the second MD if this was cancer and he said it was a matter of syntax. So my first question to you is IS A CARCINOID TUMOR A TYPE OF CANCER? It seems like if these are in the muscle of the stomach, it becomes more serious in terms of cancer. PLEASE TELL ME IF i AM CORRECT/WRONG.
I would also like to ask you about on going care concerning the gastritis. Does this mean I will eventually lose entire ability to produce acid and enzymes in my stomach? If so, is there any treatment usually administered (besides B12 shots) to help a patient digest food well? Is there anyway of turning around this disorder?
Lastly, I read where AMAG is rare and that there are 65 -117 cases in the US each year. IS THIS TRUE?
I have Hashimoto's. I read that is it common that AMAG occurs in such patients. If this is true, WHY?
Once the GI MDs do their work, is the AMAG something that the Endocrinologist monitors? I have so many specialists (2 endos for Hashimoto's and Vit D deficiency/hx osteomalacia, oncologist, allergist, 2 opthamologists for undefine r retinal issue,... and more). I'm rather discouraged to have yet another rare syndrome to find that I will be pushed around from specialist to specialist and not really have any solutions (which is very tiring).
Your advise and insight is appreciated.
btw, ill bet you have had either breast cancer or more commonly a hysterectomy/endometriosis.
Classic signs of Lymes. Intracellular Chronic Bacterial infection. Lymes bacteria usually comes with mycoplasmas and coinfections of babesia, bartonella, ehrlichia, etc.
Where do youlive? military? or family military. How old? How long have symptoms persisted. Can you pinpoint a day that your life was never the same? have a bad viral attack? new relationship then got ill? might make a difference.
Where do youlive? military? or family military. How old? How long have symptoms persisted. Can you pinpoint a day that your life was never the same? have a bad viral attack? new relationship then got ill? might make a difference.
One joint hurts, muscle spasms not aches, some stiffness after exertion, intermittent brain fog, minor eczema in knee (life long), no RA But mod arthritis in one hip, sound in neck but told it is normal for age, no eye pain but partial retinal loss in obe eye for unknown reasons.... Muscle issues seem to be myo-fascial .... I tend to have feelings of mild/moderate light headedness but not dizzy
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