Not sure about thyroxine for you, specially if you have indeed AFS.
I have an idea why low vit. D but please read below:
Problems with absorption, assimilation, resistance to vitamin D.
--General Inflammation and G/I inflammation(Very common with low thyroid sufferers).
--Low fat diet or issues with fat digestion also relating to not enough cholesterol for hormonal AND vitamin D synthesis ( vit D is fat soluble)
-- Obesity (not your issue!)
--some drugs ( not your issue)
-- Vitamin D Receptor (VDR) gene mutation ( genetic /autoimmune) or decreased VDR expression, common with Hashimoto's sufferers who in this case need increased levels of D, above and beyond normal serum levels.
Hope this helps.
I'm sorry you're going through all this. From what I've heard, Levothyroxine doesn't work for everyone. Even if your labs look normal, it doesn't mean that you're thyroid symptoms are fixed. Some people do better on thyroid medications that combine T3, T4 and other T hormones (e.g. Armour). Also, your TSH seems high.
Thank you ever so much for your understanding. :)
I have found that when I took myself off the Levothyroxine very briefly my FT3 rose and when I was put back on it it dropped again. I am very sure that means I need T3.
I am hoping my endocrinologist will consider a trial period of Armour or T3/T4.
I use sublingual B12 spray (4 sprays or 2000mcg daily) for autoimmune pernicious anaemia. I use the cyanocobalamin form but I have no problems converting cyanocobalmin to methylcobalamin in the liver. If you smoke or have other liver issues then try methylcobalamin. If you are on methycobalamin then try increasing the dosage. If that doesn't help then try the other option is B12 injections. I also have Hashimoto's thyroiditis, vitiligo and alopecia areta.
The following info is from the book "The Everything Guide To Thyroid Disease" by Theodore C. Friedman, MD, PhD and Winnie Yu Scherer:
"Although the majority of people with Hashimoto's will not develop any other disorders, it's important to know what some of these autoimmune conditions are in case you do start to experience symptoms. Keep in mind, too, that you may be more likely to develop Hashimoto's if you have one of these other conditions.
Type 1 Diabetes
Systematic Lupus Erthematosus (SLE)
Inflammatory Bowel Disease
Multiple Sclerosis (MS)"
Thanks for reply.
I have no liver problems or smoke but I was under the impression that the cyanocobalmin was not meant to be taken. So it is safe to take? I have bought a supplement which contains cyanocobalmin and another that contains methylcobalmin, is it safe to take both and at the same time?
I have no diabetes, but it is in my family and I tested normal for it.
Not sure if I have vitiligo but I have white patches on my arms and legs, is that vitiligo?
Celiac disease was ruled out with IGA antibody testing but I have been told on here and by my nutritionist I have gluten and dairy intolerance.
SLE - I don't think I have this but I did test positive for ANA antibodies but no inflammatory markers. So this result was then discounted.
Rheumatoid arthritis - rheumatoid factor was normal.
Sjogren's syndrome - I get dry eyes and dry mouth but could be the Hashimoto's so not sure.
MS - my mum has MS primary progressive and a recent MRI on my head/neck and one on my spine has shown no lesions or abnormalities.
I've read that about cyanocobalamin. However I've use this for 5 years and it works brillantly so I take what is said about this type of B12 with a grain of salt. ANA is positive for 47% of Hashimoto's thyroiditis patients so I read. My ANA was negative. I have a lactose intolerance but I can still eat cheese (trace amounts of lactose which isn't a problem). I don't have a gluten intolerance though. I have read wrinkles on the fingertips is a sign of gluten intolerance actually. My fingertips are smooth. :)