I have high levels of pain too with my CVID. They try to claim fibromyalgia but it just doesn't fit. I used to get the headaches after my infusion but now the nurse gives me 50mg IV benadryl, IV fluids during the infusion and slowed down the infusion rate just a little and no more problems afterwards.
I can relate with both of you, about the pain.Does it feel like either one of have flares? I've also been diagnosed with osteoarthritis and osteopenia, but have every symptom of rheumatoid. I've been told fibromyalgia also, but I don't have but a few "tender points." It's because of the times that I have felt like someone has beaten the crap out of me. The nurse who does the infusion said that my knuckles hurting like they do, does not sound like osteo; I know that a person can have both.
Yes, lots of pain in arms and hands. Sometimes in legs and feet. One knee at a time often hurts too. Fatigue is a given most days. My lungs are now filling with granulomas, so this may be fatigue reason? Fevers daily and sed rate averages 50. I am a 38year old man who makes no igg3. 5 pneumonias in a year and a half, all new each time according to ct scans. Only had two ivigs so far with flu like side effects the day of and the day after. No pneumonias in two months now though. Still not sure Drs found everything wrong.