Continued MS symptoms...........

[supergirl5]

Hello everyone.  My mother had MS when I was 2yrs old and she was inher ealy 20's.  I have been experiencing the following since 2009.  Facial paralysis , blurred vision,  headaches, electric sensations running through arms and legs and at times felt very heavy, dizzy, speech problems, heat sensitivity, weakness, fatigue, clumsiness when walking. I had started reporting these problems to a neurologist.  He did a ms workup including an mri and everything turned out negative. I was unhappy because my paralysis and speech problems were really bothering me.  Summer came around 2010 and so did the same prroblems again but the heat sensitivity was making my body shake and tighten.  My arms were super heavy and I would drop things I had in my hand for the weakness I had felt.  We are now here in the fall 2010 and 2 weeks ago I had to call 911 because I had felt weak to the point that I had almost fainted.  I am still going through the weakness and almost fainting symptoms as well as a new one, having extreme sensitivity to the cold. My body tightens to the point where I felt my bones were going to break. My leg seems to drag when I'm walking and when at a standing position the foot turns inwards. I can't believe how hard it is to even just taking care of my personal hygeine. This is really affecting my quality of life. This week I have had an eeg which came out neg for seizures and I'm pending results for the vng, ver, vat, and the equit that were ordered by the ear nose throat dr. She tested me in her office for balance and I didn't do well. She noticed that I was very careful when I was walking and I told her that it was very hard for me to walk because I don't know when my legs will give out because they feel very wobbly.  

My question is with all these symptoms that I still seem to have and are very hard to cope with, should I request a lumbar puncture and will it reveal more information to help my doctor in giving me a diagnoses. Does it seem like I have ms? I really just want to lead a normal life and be able to enjoy my children.  

[redbluedisc]

Your symptoms sound like auto-immune. Of course MS is an auto-immune disease. But all of the auto-immune diseases seem to overlap a lot.

I've had many of the symptoms you have for four years. I'm trying to figure out what to do. I'm being treated for lyme disease, but considering being treated for th1 inflamatory disease, which is a new take on auto-immune disease. It uses the marshal protocol.

My symptoms started in sprintg 2006 when i was taking allergy shots where they repeatedly inject you with everything you are allergic to.

I'm considering finding a rheumatologist and introducing the marshal protocol. I suggest you look into the marshal protocol knowledge base at mpkb.org and bacteriality.org and curemyTh1.org. Watch the video on youtube called "autoimmunity explained in 10 minutes". you can email me at nexes.lyme at gmail .

Also, your mother getting MS two years after having you sounds like the response that trevor marshal says predisposes women during pregnancy. the treatment is supposed to cure you of the pathogens that took hold. they use the marshal protocol for MS as well I believe.

[thyroidian]

Hi.
Sorry to hear you are experiencing some horrible neurological problems.

To rule out MS, even if the MRI, was negative, to be sure the neurologist should have done a lumbar puncture to check for the O-Bands, seen in MS.
I have known people with negative MRI,s and having the O-Bands, in the cerebal spinal fluid.

Given your family history, and with your mum being a MS patient, the neuro, should have done a thorough investigations, to rule out MS.

Also there is an other illness called Hughes syndrome, which can mimic MS, to a tee.
Also ask to be tested for this also,
Your neuro should have done some real elimination work to find a case for your symptoms.

The hughes syndrome can be found with two simple blood tests.
Hope this as helped.
Good luck, im wishing you well
Nicola

[Lulu54]

Hi supergirl,
I found your post over here in the autoimmune forum.  You might want to copy it and post it in our MS forum - we are a very active group and have many well-versed people about MS.  

I hope you'll join us over there.

be well, Lulu