Hello! In March of 2017, I traveled to Curacao and came back with stomach pains and diarrhea. That pain was very bad so I went to the ER and was told that I had travelers diarrhea. The pain did not subside, so I went back to the ER and was told that I had appendicitis. I got an appendectomy, but the pain in the stomach continued. I went to a GI doctor at Penn, and had numerous tests done - Upper tract with small intestine follow through, colonoscopy, endoscopy, small camera swallowing test, nuclear medicine x-ray, etc. The doctors concluded that I had GERD. This was over a 6 month span. At times, the pain was so bad that I would not be able to move - with movement, it was a sharp pain in the middle of the stomach area. Again, I went to the ER and was told it was endometriosis. I had a follow up with GYN and was told that was incorrect. The stomach issues somehow resolved itself and subsided. March of 2018, I was back in the emergency room with a swollen nose (under the bridge of the nose) and unable to open my eye. CT scan showed chronic sinusitis and I was sent to Wills Eye for my right eye. IT was bright red, tearing, and in incredible amounts of pain. I was diagnosed with scleritis. They started me on flurbiprofen and drops in the eyes, but it was not going away, so I was put on 60 mg of prednisone. I was on this for about three months (tappered off). In the midst of this, I went to rheumatology and was put on methotrexate. I had a horrible reaction so then put on imuran. I am now off of prednisone, my eye is okay, and taking imuran.
I now how horrible pains that move around in my hands, sometimes two fingers on left hand, other days, the whole right hand. It feels like my fingers are broken and I have trouble washing myself, dressing myself, etc. Most recently, it moved to my ankles, causing me to have to stay in bed and unable to walk. I have been on imuran, and was told to just take 2400mg of ibuprofen (3 times a day, 800mg) when I was having these 'flare-ups'. The ibuprofen helps, but then the pain will come back.
I am 24 years old, do not drink or take recreational drugs. I was in great health and very active prior to the March 2017 Curacao trip. It feels since then, my health has been deteriorating and my quality of life has significantly gone down. I've been to numerous specialist, gotten many labs done, but the doctors are unable to figure out what is wrong. Hoping to see if anyone else is able to recommend anything or shed some light onto what may be happening!