Could Atoimmune disease be Lymes? Consider this..

[ewford]

OK, before I get FLAMED for this, I will state that I, like so many sufferers here have/had hall the symptoms of MS, Lupus, CFS, etc.  I was "pidgeonholed" and told that I had MS and my dr wanted me to start on MS medications that were only symptom relievers.  As I researched more and more, I discovered that there has been a EXPONENTIAL EXPLOSION of autoimmune diseases that really took off after the early 90's.  Doctors have no explanation for it.  Why? I asked.

After doing extensive research I started to notice that Gulf War Illness and MS, Lupus, CFS, Fibromyalgia and many AI diseases are exactly alike with overlapping symptoms.  I started interviewing soldiers and spouses that were perfectly fine before entering the service, but now soldier and spouse alike are ill, with their children ill as well. Symptoms range from head to toe ie: Chronic headaches, eye pain, ringing in ears, stiff neck, sore throat, swollen Lymph nodes, joint pain, muscle stiffness, fatigue, shooting or throbbing pain anywhere, sore knees, ankles, bowell issues, heart pallipatations/pain, stomach issues, Women usually have ovarian/uterine issues.  Brain plaques, spinal fissures and a general unwellness feeling. (Am I forgetting anything?)

  The possibility of this being an chronic intracellular bacterial infection is extremely possible considering that it has been proven there were bacterial agents causing illnesses.  Many Gulf War soldiers and their families have Myco and Mico plasmal infections; bacterial and fungal infections that are systemic.  Lymes sufferers not only have these mycoplasmas but also coinfections that are exactly alike MS, Lupus, Fibro, ALS.  Once these bacteria enter the bloodstream, they go wherever your blood goes (everywhere-affecting all organs and tissues, including brain)

  Since everyones immune system is different, would it not be conceiveable that symptoms might vary from patient to patient?  Would it also not be conceivable that a dr would rush you in and out and give you a quick diag so he could see the next patient?  If your Dr ordered a Labcorp/Quest test for lyme disease, did he tell you that the tests are virtually 90% unreliable?  Those tests were designed to look for ONE type of Borrelia bacteria(there are over 200) and ONE type of form this bacteria exists in. Borrelia exist in 3 different forms.  They are pleomorphic-shape shifters.  Mycoplasmal, spirochetal, and cystic forms.  Look at it this way.  I will use an car analagy.  the test looks for a Honda element, but it sees a Accord, or a Civic or a Element depending on when the blood test is taken. And if you are taking any meds at the time of the test, it will be neg.  make sense?  Since this infection weakens your immune function, your immune system will never (rarely) show antibodies to it.  The infection is hidden INSIDE your cells.  This bacteria is truly bizzare but has been proven to exist in all forms.

  Youtube a video of Dr Lida Mattman and her work w/ Lymes bacteria and "stealth pathogens"  She was Harvard trained, PHD, Nobel Prize Nominee in Immunology/Virology and taught for over 35 years.  researchers too cadaver brain samples from Yale and sequenced them for Lyme Borrelia Burgdorferri bacteria.  The cadavers belonged to ALS, Lupus, MS, Sjorgens, hashimotos, etc diaged patients.  75% of the brains tested pos for the Lyme bacteria.


I have more info.  Please ask any questions, but keep the flames to a min.  Thnx

[Suweeeee]

Look forward to it...

[ewford]

Sorry everyone here, MEDHELP booted me for 5 days because I suggested MS COULD be a mycoplasmal infection and that they might be missdiagnosed.  I will write soon here, but I have a few things to do before I can actually sit down for a bit.

[Suweeeee]

Hi,
      I see no response as to treatment and cure or remission for ewford.? I was diagnosed with dermaomyositis on the 10th Feb 2011. After putting alot of pressure on my GP to see a consultant privately, i was convinced that i was infected with something, maybe i am just searching like everyone else. but i am sure this is an infection.. Muscle pain, inflammation, rash, itching.. if i,m not infected i,m allergic or over loaded with chemicals.. to me auto immune is just  a term to say you have an infection. Dr are not sure what and not sure how each individual will react, depending on mental health, excercise, underlying conditions..  I would love to do a course of anti biotics to see if it gets to the bottom of this.. i believe most people after two years seem to get other medical conditions and lose sight of the underlying cause, or flush it out through life habbits. diet etc.. I would like to know more about viruses and the tests carried out to find them.. I live in Northern Ireland and i am limited here with research..  Please contact me with some of your thoughts and treatments...  

Many Thanks Sue

[nutrinut_bob]

Ever wonder how you wound up with an avian mycoplasma?  I don't know about the UK, but here in the US they changed the way they killed bacteria used to make vaccines.  They are grown on fertilized eggs,  and the change in the killing method took place in the 1940s.  Used to be killed with heat and phenol, then they changed to using alcohol alone.  That would kill the bacteria, but not necessarily a mycoplasma that was within them.  Since the manufacturers are responsible, and they are in the business of making drugs, they're not going to fess up to their ignorance.  Wasn't us, it was over 60 years ago!  Nor are so called physicians going to admit their ignorance of mycoplasmas and the degenerative diseases they cause, they'd be out too much money!

[kanga1427]

I completely agree with you! I have spent years doing research in trying to help find out the problem of my "auto-immune" disease, and all the subsequent health issues that I have developed from the different types of treatments of immune-suppressing drugs. I was bed-ridden and felt like a guinea pig from the 24 different meds being used on me all to keep from treating my constant intractable pain with narcotic pain meds. High doses of prednisone has caused Avascular Necrosis in hip joints, and other meds for Lupus affecting my heart and kidneys caused Rhabdomyolysis and Polymyositis. On and on it went until I found a doctor who actually tested me for the bacteria that I knew had to be lurking in my body. So many other doctors have scoffed at my treatment of antibiotic therapy for the mycoplasma pneumoniae that I have now hidden and mutated through-out my body. The doctors may scoff but the much needed hip replacements will not be done until I can show a clean bill of health just from the mycoplasma. I now have another consulting doctor who will begin running tests on me in the next few days. She specializes in Chronic Lyme Disease. I feel hope for the first time in years. She was also misdiagnosed with MS. Both of the doctors that are now helping me have dealt with their own auto-immune disease attacking their bodies. I believe it has taken doctors that have become infected with these disorders to break down the barriers and find out the truth behind these ever increasing diagnoses of many auto-immune diseases. They almost always begin with a some type of bacterial/viral super-infection, that most doctors find irrelevant. I knew that it had to be the secret behind everything as person that has worked in research for my whole career albeit not in medicine until it became personal. There is a new test that is very important to take and it is called CD57 Natural Killer Cells, as The Western Blot is not as reliable if you have been given immune suppressing drugs. The key to getting better is Antibiotic Therapy-Long Term. I have done so much better just being on that rather than all the DMARDS, Methotrexate, Remicade, Prednisone etc. I no longer see a Rheumatologist. They have nothing that I am willing to take and their is nothing they can do to help me as their meds have caused the most harm. Other drugs that caused a great deal of harm were neurological drugs. I have also developed Steven-Johnsons Syndrome as a severe allergic reaction to most of their drugs and nearly lost my life several times. The immune suppressing drugs only make everything worse, and those that are on them along with the much prescribed prednisone are people that are falling between the cracks in hopelessness for any quality of life as they once knew it. Those drugs may mask the symptoms for a while giving the patients the sense that they are getting better, but they are only treating symptoms and not the root cause of these illnesses. The doctors are being very hard headed about trying anything as simple as using antibiotics. Good luck to you in your health returning! I look forward to reading your posts.

[thyroidian]

What an interesting post. I enjoyed reading it, like they say knowledge is power. You did all your research.

The one question i have fr you, is what helped you to get better.
How did you rid yourself off this illness?
What did you take or did you do it with diet, etc.

I would be interested to know.

I think you are highly right in these drug companys, which dont find the cure, but know how to treat the cause, and yes it all comes down to cost.


Glad you have cured yourself.

Nicola

[ewford]

BTW, there are 3 labs that use the Q-RiBB test which uses DNA sequencing (strings of DNA for the diff types) and blood smear.  Research Bowen Q RIBB test and Lymes.  IGENEX labs is used by the ILADS doctors (International Lymes and Associated Disease Society)  These are doctors that believe from research that these are chronic bacterial infections.

  I want you all to think about this very seriously.  Why have the drug researchers stopped looking for cures and only concentrate on pain meds.  A cure drug is one time deal, a chronic illness means you have to take 8 pills a day for the rest of your life.  What is more proffitable for them?  I had a friend from college that was a Pharma rep.  She retired at 38.

  before accepting your fate, do some research.  I did, and I am getting better.  It might take 6-12 months, but it's better than living the next 40 years in pain and progressively get worse