I just dont understand.. please read!!

[Mozartcowgirl]

A quick history...i have:

crohns disease
ulcerative colitis and proctitis
hypothyroidism
osteopenia
psoriasis
inabliity to digest food ( i have to take enzymes)
off and on anemia..
low potassium.. ( last it was checked it was in the normal to low range )

in other words.. my immune system is attacking me full force. it only seems to get worse..there are times when my whole body just feels like its going to just shut down on me.  
i have so many allergies.. to the enviroment... to certain foods...  


has anyone EVER heard of something that does this to a person?  has anyone who reads this heard of anyone else with all these auto immune things?  anyone have any ideas???
i eat well.. very well.. i do all the things i am supposed to do ...
now.. my joints are hurting really bad all the time.. especially in my right hand fingers.. the knuckles are getting huge..
i had blood work.. and its all coming back normal.. i dont get it...

what should i be looking for?  does anyone know? is there something out there that any one has ever heard of that could be the cause of all this?  
any help would be appreciated.. thanks

[PlateletGal]

Eosinophilic Gastroenteritis is rare from what I understand... but physicians are seeing more and more of it in babies for some reason.

[Perks]

You should look into something called Eosinophilic Gastroenteritis.  Eosinophilic disorders can mimic the symptoms of other diseases like inflammatory bowel disease, food allergies, irritable bowel syndrome and reflux, among others. I think skin rashes can also occur.  Your bloodwork would probably show an elevated level of eosinophils ... a type of white blood cell that are most commonly associated with allergic diseases and parasite infections.  I would also look into Celiac disease and types of systemic vasculitis.

I agree with some of the other posts.  I would definitely see a gastroenterologist and/or immunologist!

[PlateletGal]

You may be interested in these two links. Both of these patients have psoriasis, along with another medical condition and have successfully recovered:

http://bacteriality.com/2007/10/06/interview4/  - CFS/FM./PSORIASIS


http://bacteriality.com/2007/08/10/interview1/ - SARCOIDOSIS/PSORIASIS/INSOMNIA

[PlateletGal]

P.S. --- Osteopenia or osteoporosis is common in patients who have intracellular bacteria. People who have autoimmune disorders and/or syndromes such as fibromyaglia and CFS.

[PlateletGal]

The research protocol that I'm currently doing (but the meds are not research medications) is treating many autoimmune conditions and I can tell you that most of the patients on this protocol have two or three medical conditions. Many of them also have food allergies or intolerances... including myself. The reason why this protocol believes this (to my understanding) is because all Th1 inflammatory diseases are characterized by dysregulated Vitamin D metabolism caused by an abnormal immune system response to intracellular bacteria. So if we have bacteria and it multiplies, then we end up getting more symptoms and another diagnosis.

Here is some information you may want to check out:

http://www.marshallprotocol.com/forum2/2588.html

http://www.marshallprotocol.com/forum32/1263.html

http://bacteriality.com/2007/10/31/blaney/  - interview with Dr. Greg Blaney: MP physician and former MP patient

[Concerned Son #1]

I'm posting under my husbands name.  He was diagnosed with psoriatic arthritis after 7 years of going to every specialist known to man.  He was always told it was in his head until he was finally diagnosed.  It is an autoimmune disease like RA but has psoriasis with it.  Good luck and hope this helps!

[seewee]

No it's not a blood test. An irrigation is a rectal injection. They insert some liquid and take it out thru a fine tube. If they don't do it where you are, feces will have to be collected at least three times and hope that the parasites are in it. Sometimes, if you have them for a long time, they formed sacks and sticks to your intestine. They can even damage your liver. My doctor could tell me thru the lab exam that I had a lot of inflammation because of the white blood cells fighting the intruders. A regular blood test could show if you have high leucocytes then, it means you are fighting something.

[Mozartcowgirl]

hm.. i will DEFINATELY ask my doc to chekc for it .. is it a blood test? i have never heard of it before... THANKYOU!!  

[seewee]

Seewee has a point. When I had blasto, my potassium/magnesium was low. I never had any stomach problems though, and never knew i could have had parasites, but I had many little things which all went away after the treatment.

Protek

[seewee]

Sorry I said bacteria but those are fungi (blastomyces) and parasites (entamoeba hystolica). They caused hip pains and skin problems in my case, and for my husband, knee pain and inflammation of the lips for 2 years without finding what he had, after the antiparasite medication, it went away. And we both could not sleep more than 5 hours a night even when very tired.

Seewee

[seewee]

Please have yourself checked for bacteria (blastomycis, Entamoeba). It's not a joke. North American doctors don't believe it so my husband and I went to Mexico to visit a friend and were tested by irrigation (the best way). Checking feces does not always work because those beasts form pockets and stick to your intestine. After we were treated, all our pains and problems disappeared, even insomnia. Believe me, if you have them, and get rid of them, you will feel 100% better.

Good luck,
Seewee

[seewee]

Testing

[ChronicCaroline]

My mom was just like you, I know it is frustrating. My mom would get so depressed being so sick she couldn't do anything sometimes but the hundreds of tests would come back normal.
It took them seven years, at the time, to diagnose her with RA. Sounds like you just got hit hard wich I am so sad for you for that. I have a minor degree of your symptoms and feel miserable. Hang in there and get as many professional opinions as you can, and research on your own.

Try water aerobics if you can, because of no gravity and pressure on your joints, its a workout that I actually enjoy. It makes me feel better all over.

God Bless!

[Lane927]

I apologize for my horrible typing!
Lane

[Lane927]

Hve you been specifically tested for Rheumatoid Arthritis? My first onset was with nodules on my right wrist that looked like a gangleon, feeling tired, and hrrible pain in my hips.
Just before an "attack" I either itch at the forthcoming attack site (Joint), and/or get flu lie symptoms.
Only a specific blood test, or  nodule biopsy will determined if you have RA
Good Luck, and try wheat grass fresh juice, or Aojiru.
Lane

[Mozartcowgirl]

i forgot to add that I also have had shingles...