I would like to Post a poll

[Barb249]

I would like to know how many of you have had your Vitamin D level checked. I never realized that it’s a special test to check your Vitamin D level, I guess Sjogren’s and Celica’s disease goes hand in hand.  The doctor checked my vitamin D level on my last visit and to my surprise it was only a 7.5  I was told that it should be between 30 – 100 and if it drops below 32 it is very dangerous.  They gave me a vitamin medication to get it up quick I believe it’s called Drisdol, anyway its Vitamin D 50,000 iu, it’s totally amazing how I have changed over the last few days, energy has doubled, and my bones do not hurt anymore.  I had no idea that I hurt as much as I did until I began this medication.  If you have not had this test PLEASE DO.  They say that anyone over 60, dark completed or lives in an area that has a hard winter is in danger of Vitamin D deficiency, of course poor diet, and drinking will also add to the problem.  

[kygirl59]

My Gyn checked my Vit D level and it was 14.  She put me on 2000 IU/day for 2 months and it went down to 9.  I am now taking 50,000 IU/week for 3 months and the day after I take my pill I feel fantastic-more energy, but after a few days I am back to feeling sluggish, etc.

Has anyone else experienced such short term results from weekly Vit D and if so, what is the reason?

Thanks!

[Weesy68]

There is a connection between Vitamin D levels, estrogen and pituitary issues, including hypopituitarism (I'm too lazy to look up the spelling right now).  From what I have read and I'm going off memory right now, estradiol and vitamin D either work together or are put to use by the same receptors or transmitters.  Growth hormone is a factor in this as well.  My levels of growth hormone are mildly elevated with my vitamin D being 11.8 and my estradiol levels being that of a post-menopausal woman.  I am not post-menopausal and I do believe my ovaries are working, but I take estrogen because of my levels and there is a huge difference when I do not take it.  My labs show the other hormones are being produced.  This makes me wonder what my eventual diagnosis will be since currently the only diagnosis for now is thyroiditis & Raynaud's.

I have antibodies involved in Hashimoto's but currently do not have my TSH numbers off so I'm doing the sit and wait and suffer because I do have many symptoms.  Vitamin D is the only vitamin as far as I know that works as a hormone when inside the body.  I think most women would beg to differ that Vitamin D is not important when you consider what your hormones do.

[rumpled]

If you are experiencing severe cramping, call your doctor right away, you may need an IV of calcium. Tingling, etc - can signal a life-threatening conditon. Calcium is necessary for life so look up the symptoms and be aware. You may want to talk to your doc about upping it (you have to be careful of the kidneys).
I drink tons of milk and eat yogurt etc. As I have other endocrine issues, I need extra calcium anyway or my bones will go. You may too want to take less calcium, more often, as the body can only absorb so much (this is hotly debated but what I heard...) but take some before you go to bed at night. I take the citrical so you don't need food.

[Sonflower]

Hi rampled;

I am 12 weeks post opp of a Complete Thyroidectomy, while the ENT was preforming the surgery a surprise marble size Parathyroid Tumor popped out at him!  So one of my four Parathyroid Glands were removed.  My calcium level were at a dangerous level after surgery and I had to stay for a couple extra days in the hospital. While in the hospital and since...  I take 1000 mg of Calcium 2 X's per day and 1 Calsitrol 0.25 to replace my PTH due to my other remaining Parathyroid Gland are now dormant and we are awaiting them to wake up.

My levels of PTH and Calcium finally 2 weeks ago are at the lowest normal range....

However, I have been experiencing cramps in my feet and up the back of my leggs etc, Some days the cramping is much worst than others, and often I wake up in the night with cramps too.  I was wondering if you too have or have had this cramping problem from being Hypoparathyroid?  

Thanks for any info....   Sonflower

[rumpled]

I am here from Brain/pituitary. It goes along with a lot of stuff. I had it with my pituitary issues. I take 2000iu of D3 as my D just stays along the low side. I am also borderline hypoparathyroid as I only have 1 left (due to multiple thyroid surgeries) and my PTH goes from 5.5-10.1 (10 is the limit ha ha). My serum cal stays ok but urine cal is high as well as phosphorus.

[ChitChatNine]

I hope you don't mind me stopping by from thyroid .. I happened upon this great poll!

Just recently my levels came back at 9 and I was annoyed looking back that I wasn't checked in August when I saw my Dr. for leg cramps!!!!  She only did the panel with magnesium tests.

2 yrs ago when last tested for Vit D thru screening by my endocrinologist before thyroid surgery for nodules, it was at 25 and nobody ever addressed it.

They retested me yesterday along with PTH for parathyroids and I'll talk with my Dr next week with the gameplan .................................

I also have very bad feet that are sweating of late .. 2-3 sock changes per day ?  I read that is a symptom.  

C~