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Avatar universal

Internal tremor - shaking inside ?

I have had a shaky feeling on the inside for about 3 months now.  It started off as every now and then but for the last month it is all the time 24/7.  It is really taking a toll on my life.  It is so bad it wakes me up and prevents me from falling asleep. I have had thyroid, hormones, mri, ct scan and many other tests.  The only test that came back questionable was my ANA, it is positive, speckled pattern.  My RA factor was negative.  I have no diagnosis as of yet.  I do have Epstein Barr virus too.  Just want to hear peoples opinions on this internal tremor thing.  Anyone have it and what is your diagnosis?  Thank you
380 Responses
Avatar universal
I don't know what your shaky feeling could be. But I know the EBV can do bad things to your body. I've had "active recurrent mono" for nearly five months now. I've had so many symptoms and everything is blamed on the mono.

Good luck to you!
Avatar universal
Do you take any medications shirl000?  I have Behcet's and take quite a few meds.  I have had the internal shakes on and off for years, sometimes daily for a month at a time.  I also get visible shake but only slight and only once where other people could see it going on.

I don't know if my shakes are due to meds or just part of the disease.  So many effects of the disease and so little knowledge about it.

I hope someone can advise you a little better,  I feel for you, 24/7 must be wearing for you.

All the best.
Avatar universal
Thanks for the reply.  I don't take anything right now, just Nexium for my stomach problems.  I don't have a diagnosis yet,  Do you have a diagnosis? It is sooo wearing on me.  :)
Avatar universal
I don’t know if my ‘shakes’ are due to Behcet’s disease or to the drugs I take (10 or more daily).

Here is some info. about TREMORS:  (more info. with SYMPTOMS / CAUSES / DIAGNOSES / TREATMENT etc.)  http://www.nhsdirect.nhs.uk/articles/article.aspx?articleId=375
We all experience a very fine tremor all the time we are awake as our body goes about its daily functions. This will be the slight tremor you see when you put out your hands for example. It is known as physiological tremor and is normal.
From time to time, this everyday level of tremor can increase so that it becomes more noticeable. Occasional noticeable tremor is common in people of all ages, and very common in older people, and does not necessarily mean that you have any sort of medical condition. It can be caused by tiredness, stress, anxiety, or anger. A raised level of adrenalin in your body, which can happen when you become excited or angry, can often cause a noticeable tremor.
Essential tremor is where the normal trembling of your muscles is regularly exaggerated so that it becomes frequently noticeable. The tremor may be so exaggerated that it becomes difficult for you to do normal activities. Essential tremor is made worse by the same factors that exaggerate normal tremor, such as when you are stressed, anxious, or angry, or if you do strenuous activity, drink caffeine or take some prescribed medicine.
Essential tremor is most likely to affect your arms and hands, but it can affect your face and upper body, and sometimes your voice. It will generally get worse when you try to do simple tasks such as drinking a glass of water, tying your shoelaces, or writing. Essential tremor is usually not present when you are resting or moving.
Essential tremor affects about 1 in 250 people and affects men and women equally. It can affect people of any age, but it gets more common with age and is most likely to start after you reach 45. Nearly 5% of the elderly will develop essential tremor. If essential tremor occurs in more than one member of a family, it is sometimes called familial tremor.

Avatar universal
Thanks for the info.  I just think my symptoms sound a little different.  I have no visible tremor at all.  What I feel is only on the inside.  I think that's why I have a hard time discribing it to doctors.  It's like I'm shaking internaly.  It's weird and very uncomfortable.
Yo9u are describing exactly what I'm going through for the passed 2 months!!! its very scary and taking a toll on my body, I'm searching everywhere for answers since my doctor cannot figure out what it is. I know you posted this over 10 years ago, I'm hoping you have found an answer? im so desperate for answers! if you see this and want to contact me I would love to speak to you, someone who can relate with the same symptoms, ***@****
Hello elainayoung32.  I'm not sure if shirl000 will come back but wanted to welcome you to the forum and know it is frustrating when 'something' is going on but we don't have people who understand or talk to about it.  Since this post was made, there is probably a little more data. Here is an article about internal vibrations or tremors (those you feel but can not see)  https://www.medicalnewstoday.com/articles/322217.php.  Obviously a few things need to be ruled out like parkinsons, ms, or essential tremor. But another suggestion is to have a heavy metals test which can also cause this sensation of internal tremor.  
I have been waking up with internal tremors for the past few years.  Medical reasons have been ruled out by various doctors.  I have been told that it is due to anxiety.  I am receiving help from a therapist, but my morning symptoms seem to be getting worse.  I wake up in a panic, can’t go back to sleep and it takes a few hours for me to calm down.  I am at my wits end.  Has anyone else have these symptoms and been helped?
370143 tn?1206679669
i know what you mean. i dont get them very offen but i too have them. sometimes it happens when i eat too much sugar, or if i get really tired. sometimes they just happen. im sorry i have no answers for you but at least you know someone who feels the way you do:) hope you find the problem. keep me posted.
Avatar universal
Wow!  I've got that too!  For me it's diagnosed as muscle spasms- they are visisble and can't usually be felt from the outside, it's mostly in hip and groin area, sometimes down thigh. I used to take skelaxin, and now i'm on flexiril, both worked. I also get it in my bowels (which was very hard to pinpoint because they area actually changes sometimes.  I have IBS and endometriosis, so some people think that contributes.  For the bowel problems I take amitriptyline and a great small bowel relaxer-hyoscycamine.

It's sooo disturbing though and used to always keep me up at night.  but the drugs help a lot!  You should definitely make sure you're being followed by neurology though, have they done brain imaging to look for MS?
Avatar universal
Thanks for the reply. They did do an MRI and it came back fine.  It's so strange, like a vibration but on the inside.  
368646 tn?1208393887
Possibly your doc could prescibe Baclofen.

Have you experienced any muscle weakness or inflammation?

Awesome drug for feeling stiff. I am taking Baclofen and still vibrate.
Avatar universal
I had the same thing--like leaning against a generator and getting vibrated but no one can see it or even feel it. It went away after about a month. It happened during an attack I had right before I learned my ANA was positive.

Go to www.justanswer.com and pose your question to one of their medical specilaists. I am finally getting a diagnosis for something that my regular doctors have not been able to figure out for the last 5-6 years!
Avatar universal
Thanks for the info.  It's nice to know that I'm not the only one who has this weird thing.  It's disturbing. I will check out the website www.justanswer.com. I have had some inflammation and muscle weakness.  I'm hoping to get a diagnosis soon.  Thanks everyone for responding, it's nice to get support.
Avatar universal
I also have weakness and some muscle inflamation--it was worse during my attack, when the vibrating was happening a lot. I know something is physically wrong with me, but I think my attack was brought on by stress. My symptoms DID go away, for the most part, so I hope this will be the case for you too!
377600 tn?1225163436
Have your salt levels checked.

I once drank epsom salts (long story) and my insides shook the way you are describing.  It was caused by the sodium, potassium, calcium ion nature of muscle activity.
Avatar universal
Hello.  I am new here.  I need help.  There is so much going on with me I don't know where to begin.  Sometimes I think about if we just had a machine that checked your entire body and can print out exactly what is wrong with us in every area.

I was diagnosed with Endometriosis in 1996 and had surgery removing fibroids, lesions, and scar tissue.  I have been in multiple car accidents but only ended up with bulging discs, whipflash, and spranged something.  I was diagnosed with having Fibromyalgia in 2002.  I just read in some of my previous doctors notes from 1999 that I had rhematoid arthritis.    My blood work came back and my doctor said she thinks I have anemia.  I have a doctor's appt. with a Rheumatologist 5/1/08.  Too long of a wait.  I have Straight Medicaid only.  I really noticed and started having a lot of pain in my body while receiving massage at massage school and afterwards my bones was hurting and I was very fatigued and couldn't get up the next morning.  I have always had major digestive problems since I could remember. Constipated and/or diarrhea.  I complained for years and had tests done only on the feces and it came back negative.  But no matter what I eat, there is always a problem.  I am not regular and very gassy.  

Now my biggest complaint is dizziness every morning; ringing in my right ear; an internal shaking that I can't describe.  If someone holds my right hand they can feel the shaking.  If I get nervous or upset, this weird feeling comes over me as well inside.  I can't sleep; I'm overly fatigued.  I can't get up in the morning because everything is spinning; my joints and my bones in my left leg hurts.  My body always ache.  Migraine headache for weeks and subsided to just a headache everyday; One day my right eye was hurting so bad I thought it was going to bust out of my head.

In the roof of my mouth I have had this bump that keeps busting filled with blood and pus for a year now.  I didn't have insurance and couldn't go to the dentist.  I have a temporary root canal done since 2004 that now has a big abcess in the hole of my tooth that ruptures.  I have this rash on the bottom of my feet since 2004 that I was treating like athletes feet but comes and goes with watery like small boils that itch so bad that I scratch my feet until it bleeds.  I have to constantly soak and give myself pedicures but it only lasts for a minute and back to white bottom scaly feet.  My head feels so heavy that my neck is always hurting and I can't hold it up.  My GYN said they found HPV.

I went to the emergency room last summer and they diagnosed me with Vertigo and gave me some pills.  I only took one because it made me feel strange.  I have a history of antibiotics most of my life since high school.  I just got over what I thought was the flu and now I am just dealing with the tightness and chest cold.  My grandmother survived the fire, but had a tracheoscapy and is home suffering with tracheal stenosis.  My sister and I are taking care of her and looking for doctor's second opinion on whether or not she needs surgery.  Yes, I have been under stress in the last year.  I desire to get answers to begin correcting whatever is wrong with me.  Not knowing is worse.  Dragging on hurts as well.  I wasn't sure if my tooth poisoned my system with all of these caps that were taking off of my teeth and never taken care of since 2004 or if it is something else.  I went to a Neurologist the other day, and I believe he treated me unkind because I have Medicaid Insurance.  He told me it is Friday and to hurry up with this examination.  He told me nothing is wrong with me I will have these ringing and pains because it is my make up.  To come and see him in 40 years with real problems because I am fine just based on one physical of walking lines, sitting, bending, etc. He asked me why didn't I go back to the Neurologist I had years ago before I moved out of the state.  

I guess this is normal to not be able to function.  To be out of school because I can't get up in the morning.  I don't sleep at night.  I have memory loss.  I get stuck with my thoughts.  I get nervous and anxious.  I shake and tremor internally and can't control it.  My head hurts so bad sometimes I think it is going to fall off.  My bones and joints ache and hurt especially if I do a lot of regular house chores in one day. I get so exhausted I can't get up when I do lay down.  This is beyond frustrating that it can make me so depressed that if it wasn't for my faith and prayer life, suicide would be easy to embrace.
I told you I was a mess.  I thought all of this was due to a family tragedy of the death of my niece and my mother in a fire 11/06.  
Did you ever get a diagnosis
You just might be interested in the documentary "Root Cause".  It just might help you get to the solution to much of your problems.
Avatar universal
Yes I too have these internal vibrations... It's very frustrating.  I have been diagnosed with some sort of autoimmune disease affecting the brain.  They havent pin pointed which one though.  I've had every test imaginable.  the only thing that showed up is some small white matter foci inthe brain, although many people have this.  I have had abnormal PET scan which showed aabnormal glucose uptake in the brain and now am having seizures due to the inflammation in the brain.  I see a neuro who started me on IVIG monthly and now am taking seizure meds.  
I would recommeend seeing a general practitioner than a neuro if needed.  Its very frustrating because it wakes me at night and cant sleep.  I also have other symptoms like memory problems, feelings of weakness in arms and legs and feeling "foggy".  I'm also extremely fatigued.  Wish I had some answres for you, but know your not alone in these crazy symptoms.  
Mary Beth
Avatar universal
i have tremors but only in my chest,I did have 2 panic attacks but that was 2 yrs ago, took lexapro for 6 mo than weened off my self.i had ventricular tahycardia on a monitor and svt but they are substaind .get palps etc for 2 yrs i had trenors inside not notice. iget them anytime some times in bed etc everyday. have h/p and i think when it goes up that causes these tremors .if b/p is down i dont get them. i also  swollen feet if b/p goes up. i do have 1plus valve in aorta and tricuspid but doc seems un concerned,
   i also get more skip beats when my b/p goes up with these tremors i like you cant figure it out  go to docs in april and tell him again. let you know if i find out the reason
Avatar universal
If anyone figures out what this is please let me know. ***@****  It has just started within a week and is preventing me from going to school. I am only 16 and this is freaking me out so bad. I have migraines and so I take a lot of medicine. But I have looked up all of them and none show this kind of side effect. I can't do anything without shaking... or I guess feeling like I'm shaking.
Avatar universal
i to have the shaking on the inside this started after i had a thyroid lobectomy had loads of blood tests, only thing showing is raised white cells, had three lots of antibiotics no change still getting them, my whole body feels like it is shaking but no one can see it, i hate it. The doctor is sending me to see a neurologist i hope he can figure this out, i feel like i am going mad as i know its there but no one can see it. my thyroid function is normal, so are all other blood tests.
Avatar universal
I had a high white blood count too.  It must be related.
Avatar universal
for about 2 weeks now when im sitting down or sitting and leaning against something i feel this strange internal shaking. it cant be seen from the outside its just a very strange feeling only i experience. it goes when i stand up.about three months ago one   day i woke up and suddenly vomited a lot of blood (out of the blue).i was diagnosed with severe inflamation of the duodenum after an endoscopy and given blood transfusion.i was discharged with omeprazole tablets.i just went for a colonoscopy last week and an endoscopy to see if it had healed up.everything was normal except that they found a small hiatus hernia and indications of anaemia.this internal shaking is really scaring me and i dont know what to do.
Avatar universal
i have internal tremors and muscle aches, muscle aches most of the time but the tremors are there more when i sleep or am resting they get worse either when i do strenuous work or feel threatened can uhelp alan
Avatar universal
I'm addressing my response to shirl, but it is for others here too.  I have had the internal tremors or "shakes".  I asked a physician about it, but he said he had no idea.  I have fibromyalgia and chronic fatigue so I investigated, and this is one of the symptoms.  I get these when I am sleep deprived, very exhausted, or have low blood sugar.  Someone mentioned the EBV.  Most of you have given some typical symptoms of these 2 related illnesses.  I suggest you research fibromyalgia and chronic fatigue on your own.  After looking, if you still have problems finding information or want more information, I can give you some great sites to go to.
Avatar universal
The day after my Mom died my feet and lower legs started to shake internally.  I figured it was due to shock.  It is now 3 years later and it is still going on.  I can sleep but wonder what is up.  
535822 tn?1443976780
I used to have this, I found it was definatly the Meds, and differant ones can do it, try if you can without them and see if it makes a differance SSRIs do it and stomach Gerd Meds can, I also found some of the natural Remedys like 5HTP and Sam-E did it aswell its like an internal trembling, it was definatly the stuff I took causing it, I havent had it for ages and I take nothing now even though I have Hives, the last anti Histimine was the same.Check out what you are taking and see if you have to, there are a ton of side effects.
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