Welcome to the forum.
I can sense your pain and suffering through your words!
There are a few things that need to be explored.
I'll post later ,as I'm at work now, and ask a few questions, if you don't mind.
Hang in there. Your spirit is going to help you pull through this.
This will be a long post. Please be patient!
Fundamental reasons for ill health.
1. Lack of nutrients (nutritional deficiencies) needed for normal functioning
2. Lack of oxygen at a cellular level and/or the inability of the cells to utilize oxygen.
3. Toxins, poisons, and waste products in the body because of an inability of the body to detoxify.
4. Lowered energy due to stress, shock, injury, emotional upsets, losses, worries, etc., and a lack of energy at a cellular level.
5 Genetic predisposition to illness.
Have you investigated any of the above, and if yes, what were the findings
and what was done?
Originally: (from above) #4 +#1 --> imbalance and lowered immunity--> infections.
Following Antibiotic treatment: Antibiotics--> temporary relief from infection, immune system compromised further, possible yeast infection,
#5 expression, #2 inefficient breathing, #3 compromised lymphatic function, #4 decreased capacity for energy production--> All bodily systems functioning below capacity. (Not necessarily all in this order.)
In order to save a step I'm proceeding b4 you send me any answers or details.
Suggestions (disregard what has been addressed already):
a.Complete nutritional panel including tissue analysis for minerals.
Zinc, magnesium, B12, Vitamin A, Vitamin D, copper, are suspect!
b. Complete detoxification starting with colon cleansing, followed by liver
& G.B, kidney and lung cleansing.
c. Breathing retraining -visit the normal breathing website.
Co-enzyme Q10-water soluble- supplementation.
d. Check for yeast infection. For self testing do a YouTube search for Candida saliva test. fast results. let me know the results
e. Do the Dr. Coca's Pulse test for reactions to anything ingested- even
delayed and hidden reactions. Free download. Takes a week to complete and get answers.
f. Have a blood volume test. If 15% lower than normal ranges* , it is indicative of an undetected serious pathogenic infection.
*25ml - 35ml red blood cells per Kg in body weight.
g. Ask if you can have a 24H Holter ECG. (This you take home-cannot shower or bathe for 24H!)
They have to look for abnormal T-Wave patterns-instead of peaks, there are inversions and valleys. Regardless of voltage being normal or not.
This again is very significant as it is indicative of undiagnosed serious pathogenic infectious conditions.
h. Distress! Do EFT, meditation, go to bwgen.com (binaural beat generating
software for relaxation, meditation, sleep induction) etc.
You asked:"Why is my WBC count and inflammatory markers normal then?"
It is because the undiagnosed pathogens are INTRACELLULAR and disguised as regular cells by wrapping themselves in cellular membrane
avoiding detection by standard blood tests. Your doctors wouldn't know much about this, as they are not up with this research and have no training in this field.
Very good observation though!
Your suspicions may be "right on the money"as they say.
However all this must be very overwhelming. Do you have anyone that can act as your health coach, to help you put together a plan of action
and see it through? The medical system WILL NOT do it for you.
It it very dysfunctional in cases like yours- I'm sure you figured this out already.
So, check out my suggestions, research on your own as well
and should you have any questions please let me know.
I didn't mean to bombard you with information. take your time with all this.
Stay strong and keep your focus on your improvement.
You can do this! Step by step.
For more support come and visit also the " Surviving Neurological Limbo Land-No dx" Group.
I just wanted to add:
For the vitamin D deficiency , taking sub lingual D3 emulsified is
probably best up to 50000 i.u. daily is safe to build up your stores, but have this checked first.
Also for magnesium-you're probably deficient - note that 99% of the bodies magnesium in the bones and tissues, so a blood test wouldn't give accurate results ( there's a mechanism that keeps it around 1%in the blood). Transdermal delivery of Magnesium Oil (Magnesium chloride flakes + water) is the preferred method of delivery-you also avoid any laxative effects bypassing the digestive and g/i systems.
Thanks for your replies! I had to read the longer one several times to take it all in, there was so much good information and advice!
I've made lists of the things I need to google, supplements I need to take, and things to talk to the doctor about next. It's made it all seem more manageable.
I've just been looking into seeing an immunologist privately (bypassing my GP), I've found one that's a long way from where I live, but sees private patients and is the head of a CFS clinic that researches the link between CFS and virus's. If anyone's going to be interested in my symptoms, it'll be him I think. Will wait until I see the next GP, I'm seeing a female one this time on the 14th, (I've found female doctors are far more interested and don't fob me off because they don't instantly understand what's going on.)
I'm already on vit D supplements as that was the one thing that did show up. I haven't been tested for any other vitamin/mineral deficiency. I was told that 'you should get everything you need from your diet'. When I asked about malabsorption, the doctor just pulled a funny face and said it was unlikely and then moved on to something else.
The one thing I didn't understand, what do you mean by liver, lung, kidney and GB (Is that gall bladder?) detoxification? How is this done?
Thanks again :)
I have been doing biochemical and nutritional research for years.
My wife was a clinical dietitian for many years. It is a well known
fact that medical doctors - here in N.America anyways- are not
educated and trained sufficiently in these fields.
"You are what you absorb, assimilate and eliminate" has replaced what you eat.
And in recent decades western societies for various reasons are facing alarmingly increasing rates of related issues.
With all declining nutritional values of the foods we eat (it is scientifically proven- good book with sited research is "The End of Food"
Deficiencies are as commensurate with the incidence of chronic disease.
My opinion is to err on the side of supplementing specially with
vitamin D3 SUBLINGUAL, Magnesium (see my earlier post) as it's almost
absent from the soil and commercial fertilizers usually do not contain any.
So where do we get this invaluable mineral (used in 300 important bodily functions) and B (B12 sublingual) and C Vitamins. (C with Bioflavonoids)
Detoxification - yes GB is gall bladder- is a very overlooked aspect of
health care. Please do a search for this as it would take me a lot of time to explain this to you in a post.
JohnBarron.org has a good tutorial on this.
It is not very complex. It's just involving and one needs to do a colon cleansing first for obvious reasons.
Go to the Lyme Disease forum, to get a pulse of what is going on with dx of underlying undetected pathogenic infections. It is frightening to see how the medical societies are approaching this.
If you need more info do not hesitate to let me know.
Wishing you well.