I am 48 years old and approx 8 months ago I woke with partial vision in my right eye. Optic Neuritis was eventually diagnosed and the left eye was also affected a few weeks later. This lasted for 5 months in total and I still suffer from double vision and photo sensitivity.
Around the same time as the first eye was affected, I started getting tremors and jerking in my right arm and twitches all over my body apart from my face.
I also have suffered from the following symptoms throughout the past few months - my right foot turns outwards as if the bottom of my leg has twisted, terrible burning pain in both feet, my hands hurt constantly, back spasms that have been constant some days, numbness of my face (and all of my right side has alot less feeling than my left side), I forget everything and this is continuing to get worse, pins and needles in various parts of my body, terrible sweats that come day and night, itching all over my body that feels like it is crawling with insects, and my balance is completely shot and I have had falls. There are many more symptoms too - all weird and quite awful.
I am seeing a wonderful neurologist who is a MS specialist, who was quite sure I had MS. But with clear blood tests, VEP, spinal and brain MRIs I have now been told it is unlikely I have this. Which is obviously great, but I would just like to know what is going on with my body. I am due to have another nerve conductor test, have had more blood tests, physio on my twisted foot, see a CB therapist, and I will maybe have a lumbar puncture.
If anyone has any idea what other tests I can have or if they have any idea at all what is going on with me, please please let me know as my body is in a terrible way and going from very healthy to this is just so awful. I can no longer leave the house without someone being with me as my balance is so bad. My eyesight has improved over the past three weeks (thankfully) but the balance issues are just as bad.. I am covered in bruises having walked into every door in the house!
Thank you so much for reading this and please help if you can.
Paula