I am sorry to hear about your condition but an glad to see the fighting spirit in you! Muscle weakness can be true type as seen in muscular dystrophy, inflammatory myopathy, or neuro-muscular myopathy (myasthenia gravis). It can also be a perceived muscular weakness as seen in chronic fatigue syndrome. Amyotrophic lateral sclerosis, lupus, and Lymes can also cause muscle weakness. Do discuss this with your doctor and get yourself examined. Take care!
Welcome to the forum.
I can express more freely here, as I'm not a medical doctor.
There are a number of chronic neuro-degenerative and auto-immune
conditions that have a pathogenic infectious basis, going undetected,
sometimes for life.
Lymes Disease and Pathogenic Mycoplasma Infections,
are typical examples, often go misdiagnosed or undiagnosed.
In most cases the difficulty lies mostly in the diagnostic and treatment procedures, protocols and methodology.
As these pathogens have an incredible ability to evade detection by the majority tests available - they can disguise themselves as regular cells,
wrapped in cellular membrane- and over time may take over parts, organs and consequently entire systems in the body.
How did your Neuro rule out Lyme Disease? I'm not suggesting that you may have it but it HAS to be ruled out, as it can mimic ANY set of symptoms of ANY disease!!!
It is one of the most common undiagnosed or misdiagnosed conditions, with MULTIPLE times more false negative results, than not!
The ONLY hope is with seeing an LLMD (Lyme Literate Medical Doctor)
and getting tests for a complete Lyme, Mycoplasma and other Co-infection
Panel by IGeneX Labs.
LLMDs are becoming very difficult to find, as there's a lot of controversy
with the ruling medical authorities, regarding procedures, IDSA being the one dictating the rules.
So far this has kept tens of thousands of suffering patients in Limbo,
riding a medical merry-go-round, and getting "dizzier" and more "nauseated" with each turn.
As Dr. Mathur stated, you are young and have a fighting spirit within you.
Take advantage of this in order to save your life from becoming an "unsolved medical case" or worse a "misdiagnosed medical case" which is like a medical life sentence.
There are many triggers for these conditions, rooted in certain imbalances.
Stress, physical and emotional, chronic deficiencies, lifestyle - even when we think it is very healthy, significant traumatic events, are all possible
There are many things you can do.
I would start by becoming your own health coach. You had the discipline to
become a bodybuilder, and I know what it takes, as I have done it for wellness and lifestyle purposes-not competitive though.
So you can do this. Become as educated as possible in health matters,
be proactive, join forums, stay mentally focused and take charge.
Important! A strong immune system and a well balanced emotional state
are necessary, before any cure can be experienced.
keywords for your searching : ILADS, LLMD, IMMED, Dr Garth Nicolson,
Wishing you well.