Hi all! Im @ a point of severe frustration, hope I can get some thoughts...
Im a 36 yr old F. Since (roughly) 2008, I started having some serious fatigue (the kind where no matter how much/little sleep you get, youre still exhausted), major pain issues: Deep throbbing aching in lower back, lower legs, feet, hips, arms, shoulders. Sometimes my feet & hands swell, itch, red. Fingers feel fat/stiff sometimes. I get boils & pilonidal cysts frequently. Hair loss (significant amnt), rashes. Rash will appear at base of neck/chest, stay around a week & disappear. This happens a lot when I go outside for long periods, or when Im super stressed. At the same time, my pain is real bad, Ill get a boil or 3. Ive had (3) miscarriages in the past. Im always "sick", not flu sick, just a general feeling of not feeling well, stomach pains, fatigue, nausea, headache.
Ive been to atleast 4 rheumatologists over the years, always an elevated sed rate and/or CRP....Negative ANA. Negative for pretty much everything they test me for. *sigh*
MRI shows arthritis in lower lumbar, DDD, bursitis in hip, fibromyalgia. Those are my current dx.
It doesnt make sense, I feel theres something they arent catching, something under the radar...Im fed up, almost 8 years with feeling like this & nothing! I feel like these dr.s think im making it all up, but thats not the case at all.
Ive had different friends & coworkers suggest Lyme tests, Im not one to ask for a test, drs hate being told how to do their job.
Idk if Ive ever even been bit by a tick, but coincidentally around a few months prior to all of this starting, I was living in the south and my dogs got quite a few ticks from the new house/yard we lived in.
Thanks in advance!