New things happening

[phinnigan]

Dx with ms; but don't have a neurologist that I'm comfortabele with.  For example, the day I got the dx he simply said " looks like we are dealing with MS, do you want to do a clinical trial or start on meds right away:"  I was in shock and didn't think to ask to see the MRI results, lumbar puncture etc.  My question is, when do you report new symptoms to your neurologist?

[phinnigan]

Thank you for responding... I think I am really just having a hard time accepting that I have MS.  For a long time I didn't know if the things I thought I was feeling (ie the tingling hands) was real or just in my imagination because the sensations are sporatic and just odd.  I had a brain MRI that showed 2 lesions,  a lumbar puncture and blood test during that showed olio bands (I don't know how many), an evoked response test that apparently was normal, plus blood work for lyme disease and others.  I guess I'm wondering if the diagnosis would still have been made if the symptoms I think I feel aren't really there?  Sometimes I feel like I am crazy...

[Dr. Kokil Mathur]

Hi!
I am sorry you had to learn about your MS diagnosis this way. Usually the doctors do explain the reports of MRI and lumbar puncture in a language you can understand. Or they do explain what you have and what you can expect from the disease. If you have MS, you need not join a clinical trial for new drugs. There are many known therapies for MS. Usually people who do not respond to these therapies join such trial in a hope to get some benefit from a new drug.  Ideally, you should report any new symptom as and when it occurs, especially if it is really debilitating. Otherwise you can make a list and seek an earlier appointment. Take care!