Avatar universal

Point me in the right direction???

I'm going to try and make this as short as possible but there's a lot to this so here goes!! I'm a 25 yo female who has been sick since I was 12 years old with no relief or any idea as to what's the problem. I've had a couple wrong diagnoses but after today's drs visit I'm so depressed. I had surgery last week for endometriosis thinking we had finally figured out the problem but after my follow up today he reveled he was incorrect and no enometriosis was found when the laparascopy was performed. It's been suggested by a few people that I research the possibility of autoimmune. Here's a bit of a rundown of what's happened

At about 12 I remember being so tired a trip to the grocery store or library left me beat. Later That year I came down with respiratory symptoms when all my life I had been asthma and allergy free. All of a sudden I had pneumonias,bronchitis,sinus infection after sinus infection-I went through god knows how many courses of predisone and antibiotics in a very short amount of time. After about two years of suffering, my doctors decided it was enviromental. I lived in okinawa japan at the time. They transferred us to the bay area in california where I continued to stay sick with the same types of illnesses. During this time I started to experience low back pain that has continued well on into my adulthood. My menstrual cycles started very early and were always very brutal. By the time I was 18 we had relocated to Arizona. My respiratory symptoms did improve unless I ever came down with an illness. I still got pneumonia's or bronchitis a few times a year, though. When I started into adulthood I saw marked improvement as most of my asthma and allergy symptoms disappeared for the most part. But at this time I started getting horrid back pain and had problems with ovarian cysts rupturing. I was diagnosed with polycystic ovaries but that was one of many misdiagnosis. I've since had three children with brutal pregnancies. I know vie wrote a lot so ill try to wrap it up lol since reaching about 20 ive had my gallbladder removed,diagnosed with carpal tunnell by test in both hands and my hands wrists and back swell like nobodies business!! I have two herniated discs in my spine with no known injury (s1 and l4). And my doctor describes my coccyx (tailbone) as degenerated. My hips are so incredibly tight some days I can't move. And then theres the digestive problems. Since I was 21 vie been having horrid pelvic pain, cramps,blasting,painful gas and my bowel movements require me to basically lie down afterwards because I get so sick. When I feel I "gotta go" I get hot from head to toe,sweaty and my stomach feels like it's making a fist. Somedays this can happen ten,fifteen times in one day. And then were back to the ob who thought all my symptoms had to be endometriosis. But as i said in the beginning, he was wrong :( I also recently was nearly hospitalized because my potassium had dropped to dangerous levels, I had to take two weeks worth of these huge pills four times a day! I've also had problems with low iron a lot. I should also mention for good measure I'm not overweight I'm actually underweight and I am very active.

If you're still reading thank you!!! I am miserable and in so much pain and I need help if there is anyone else like me who can at least steer me towards a diagnosis i will be so grateful.  
3 Responses
Avatar universal
My guess, and remember, it is only a guess, is that you have a mycoplasma infection.  I first contracted mine in 1968 courtesy of the USAF, who came to my little town after a flood and offered typhoid vaccines.  You won't find anyone in mainstream medicine to help you find out if indeed you have the little vermin.  A Lyme disease doctor may be of help, or search for Dr. Garth Nicholson's site.  While you're waiting for an appointment from one of these, do yourself a favor, google mycoplasma infection, and in all likelyhood, you'll find many of your symptoms.
1756321 tn?1547095325
Various reproductive, GI, urologic, and neuromuscular disorders may cause or contribute to chronic pelvic pain. Sometimes, multiple contributing factors may exist.

Extrauterine reproductive disorders:

Adnexal cysts
Chronic ectopic pregnancy
Chlamydial endometritis or salpingitis
Ovarian retention syndrome (residual ovary syndrome)
Ovarian remnant syndrome
Ovarian dystrophy or ovulatory pain
Pelvic congestion syndrome
Postoperative peritoneal cysts
Residual accessory ovary
Subacute salpingo-oophoritis
Tuberculous salpingitis

Uterine reproductive disorders:

Chronic endometritis
Atypical dysmenorrhea or ovulatory pain
Cervical stenosis
Endometrial or cervical polyps
Symptomatic pelvic relaxation (genital prolapse)
Intrauterine contraceptive device

Urologic disorders:

Bladder neoplasm
Chronic urinary tract infection
Interstitial cystitis
Radiation cystitis
Recurrent cystitis
Recurrent urethritis
Uninhibited bladder contractions (detrusor-sphincter dyssynergia)
Urethral diverticulum
Chronic urethral syndrome
Urethral caruncle

Musculoskeletal disorders:

Abdominal wall myofascial pain (trigger points)
Compression fracture of lumbar vertebrae
Faulty or poor posture
Mechanical low back pain
Chronic coccygeal pain
Muscular strains and sprains
Pelvic floor myalgia (levator ani spasm)
Piriformis syndrome
Rectus tendon strain
Hernias (eg, obturator, sciatic, inguinal, femoral, spigelian, perineal, umbilical)

Gastrointestinal disorders:

Carcinoma of the colon
Chronic intermittent bowel obstruction
Chronic constipation
Diverticular disease
Inflammatory bowel disease
Irritable bowel syndrome

Neurologic disorders:

Neuralgia/cutaneous nerve entrapment (surgical scar in the lower part of the abdomen; usually iliohypogastric, ilioinguinal, genitofemoral, and lateral femoral cutaneous nerves)
Shingles (herpes zoster infection)
Degenerative joint disease
Disk herniation
Abdominal epilepsy
Abdominal migraine
Neoplasia of spinal cord or sacral nerve

Psychologic and other disorders:

Personality disorders
Sleep disorders
Sexual and/or physical abuse


Potassium deficiency (hypokalemia) causes include:

Diseases that affect the kidneys' ability to retain potassium
- Liddle syndrome  
- Cushing syndrome  
- Hyperaldosteronism
- Bartter syndrome
- Fanconi syndrome
Diuretic medications (water pills)
Eating disorders
Eating large amounts of licorice
Magnesium deficiency
Low dietary intake (a distinctly uncommon cause of hypokalemia)
1530171 tn?1448129593
Hey Kmae1107,
The multiple, serious and undiagnosed or mis-diagnosed conditions and all those symptoms can ONLY co-exist in a systemic pathogenic infection.
Nutrinut_Bob, having gone through this, hit it right on!
The opportunistic nature of this pathogen has progressively taken over most systems, organs and parts of your body.
Make no mistake, the elusive characteristic of this pathogen, is what has kept all your doctors and specialists from properly diagnosing you all these years.
Many of the disorders mentioned by Red_Star are actually consequences
of a widespread mycoplasma infection, that has taken over the immune system.
While doing your research, as Bob suggested, I urge you to find a holistic
therapist or naturopathic doctor, the best you can afford, and get your immune system strengthened.
It is perhaps your only hope for improvement.
Only then you can beat this infectious pathogen and reclaim your life.
It is the bottom up approach, where you build up your immune system,
step by step from the bottom up, before accepting any of the suggested treatment protocols.
And for this I agree with Bob, contact Dr. Garth Nicolson.
Just do a search. And also take time to read various related posts here.
Please do not waste your life further, dealing with conventional doctors who are not knowledgeable in this field.
Feel free to contact me anytime.

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