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Avatar universal

Random episodes of brain fog?

I have been suffering with many unexplainable symptoms now for around 5 years.

I am Male, 25, 6ft, 12.5 Stone. Relatively healthy and jog or bike.

I have:

- Had a plethora of every blood test imaginable.
- Seen several doctors.
- MRI
- ECG
- EEG

All tests have been negative and all the professionals are still to find out what this mystery illness is.

It is incredibly frustrating because nobody else can see or experience how I feel and understand how upsetting it is to deal with a mystery illness on a daily basis.

Symptoms;

- Episodic random bouts of brain fog. Spaced out, difficulty concentrating, difficulty reading, absorbing things that are happening, memory problems, difficulty completing easy tasks and irritation.

No pattern to these bouts. Relaxed. Laid in bed. In the car and talking to people.

I have noticed it can happen slightly more when.

- Looking at computer screen.
- In a rush.
- Climb several flights of steps.
- Not when biking but shortly after finishing.

Last around 30 mins.

I am 99.9% sure that it is nothing to do with anxiety.


- Fatigue. Easy to get tired. Unrefreshing sleep.

- Memory problems and difficulty thinking with a clear mind.



I have many other symptoms but I feel these are the key ones that I struggle with.


These symptoms all started 5 years ago. Shortly after getting reactive arthritis after contracting an infection. Now 5 years later the reactive arthritis and infection are long gone but I am left with this mystery illness.

I've had this whilst writing this post and it has been incredibly difficult to write and organise my thoughts needed to write this post.

It is difficult throughout this period to remain positive and with a mystery illness hanging over you constantly it is a worry and this can cause rumination.

Blood Sugar related, blood pressure related, ME, Chronic Fatigue, Post Viral Fatigue, Mental Health, MS, Lymes Disease, Adrenaline Fatigue, Something serious etc etc

Any help would be greatly appreciated.
5 Responses
1530171 tn?1448133193
You may want to look into the following:

1. Candida self-test/screening. Search under: Saliva Test for Candida

2. Complete HLA panel to verify the body's ability to fight biotoxins

3. Heavy metal toxicity investigation

4.  Stool analysis  for pathogenic bacteria, parasites, yeast, and levels of beneficial  bacteria, as well as  leaky gut syndrome (LGS)
Also urine test for LGS, called PEG.

5. CMV, EBV, HHV-6, HSV1 and HSV2 tests

6. Hypothyroid type 2- just like diabetes, there's type 1 and type 2.
The vast majority of ENDOs do not look into this. Very common!
Free T3, Free T4 and Reverse T3 are the tests to ask for.
NHS may not allow these, so you may have to go private.

7. Deficiencies. Tissue magnesium-not blood magnesium!
Glutathione, Potassium, Neurotransmitters.

8. Comprehensive metabolic profile for organ integrity evaluation as well as fluids and electrolytes.

9.SPECT (single photon emission computed tomography) brain scan
which shows blood flow and more. Offers much more dynamic imaging than MRIs, which are more static.

10.Grains/carbs/gluten intolerance
Look into Gliadin test (urine), by Cyrex labs. They test 12 forms-not just the alpha ordered by most doctors- of gliadins regarding gluten intolerance (not necessarily digestive).
Now they can also test which part of the body is affected.
Many hypothyroid sufferers have gluten intolerance and don't even know it!
The gluten molecules-mainly from gmo grains- resemble the TPO(Thyroid Peroxidase - an enzyme necessary for the signalling Thyroid hormone production) molecules and thus the immune system in its response against gluten, attacks the TPO in the Thyroid also!

Suggestion: go gluten-free for 3 months. Note that gluten is in ...everything
including ketchup, soups, soy sauce, shampoos, cosmetics, envelopes,
condiments, play-dough and yes through the skin is an unsuspecting way it enters the body, rather easily.

11. Homocysteine test for neurological B12 (Methylocobalamin) and neurological folate (Methylfolate).

12. Aspartame related Neurological Symptoms -Re: Diet Pepsi.
The nervous system is a very delicate machine and very sensitive to minor amounts of toxins. Aspartame negatively impacts brain function and can trigger or mimic many serious disease processes.

Aspartame can cause or trigger the following neurologic conditions: memory loss, confusion, migraine, dizziness and unsteadiness, seizures, sever speech slurring, and chronic fatigue syndrome.
----Source: MD Health

Hope this helps.
Niko
1530171 tn?1448133193
Hi pepsiplunge.

Do you like diet pepsi perhaps?
Probably a silly question, but worth a shot!

Seriously now, in order to help you with your question, I would like to know  what has been ruled out with tests including results and lab ranges where applicable.

What type of infection did you have, prior to your RA and what treatment were you given?

Have you ruled out low thyroid  function, low adrenal function and if yes include tests, results and lab ranges. How about Candida Albicans?

How are your D3 levels, B12 including neurological B12 (methylocobalamin) levels.

Do you know if you have MTHFR gene mutation ?

Gluten sensitive? Any testing for gluten, including cross-reactive foods to gluten?

Sorry for all the questions, but it would be helpful if you could answer most of them.

Looking forward to your reply.

Niko


Avatar universal
Hi

I do indeed like Diet Pepsi haha but try and avoid it. Pepsi plunge is actually a wrestling move haha.

1. Chlamydia.

2. So many tests that I am not even sure any more what has been tested for.

Blood Sugar, Thyroid, Vitamin, Kidney Function, Eletrocytes etc etc

Couldn't tell you without going to the doctors and getting a print out of all these results but they where all negative. And referred to as an MOT.

3. Never heard of MTHFR before.

4. I have never heard gluten tests being mentioned before but I am sure it must have been tested because of it being an obvious thing to check and the amount of bloods I have had done.

5. Candida Albicans is something that strikes quite a chord and I am quite interested in.

6. Not sure about adrenaline fatigue.

7. Treatment for RA was absolutely nothing!! basically there is nothing we can do but run it course and give you some Naproxen (NSAID) for the pain.

8. Once mentioned gluten allergies to a doctor who said 'try not eating pasta and bread and see if there are any changes) pretty stupid suggestion considering so many foods have gluten in them.

9. Father had a hyperactive thyroid gland but I have been tested many times so it isn't that.

It was almost like they felt I was a hypochondriac for having so many symptoms :(
Avatar universal
Quite sketchy information from me to be honest.
Avatar universal
Also. I do have the HLA-B27 gene.
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