A lot of it sounds like Lupus. Sjogren's Syndrome may account for the mouth sores, joint pain and swelling, severe dry eyes, fatigue, change in color of hand and feet. You definitely have inflammation based on a high sed rate. Addison's Disease could account for many of the symptoms. The problem with autoimmune diseases they seem to mimick to some degree each other. It can be difficult to narrow it down. I don't see lab values to help in that area. You could even have problems with your adrenal system. Your body seems stuck in the "fight or flight response" with the high nor epi. That alone could cause many of these symptoms too.
I am wondering why they haven't tried something like plaquinel for you. Many of your symptoms do sound like lupus/fibromyalgia.
"The Lupus Book" by Dr. Wallace says about Livedo Reticularis: "Some 20 to 30% of all lupus patients have a red mottling or lacelike appearance or livedo reticularis under the skin, causing no symptoms. It indicates a disordered flow in blood vessels near the skin due to dysregulation of the autonomic nervous system. Even though normal individuals may demonstrate livedo reticularis and no treatment is ever required, recent work has associated this condition w/ a secondary fibromyalgia, with the circulating lupus anticoagulant, or w/ anticardiolipin antibody. Livedo reticularis on rare occasions can lead to livedoid vasculitis, a condition that involves superficial skin breakage. This complication may be treated w/ steroids or colchicine.
You are going through a lot. Many of us here know what it is like to be going through so much w/o the help needed. I'm praying for you kid. You've got to feel better before that grand baby is born!
Have tried plaquenil and had a reaction. Have also tried Methotrexate and my bladder burns real bad and i feel so sick on it. I am still on steroids. Going to Urologist to figure out the bladder issue.
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