dizziness, nausea, fatigue, light sensitivity, headache, cold hands/feet, joint/muscle aches, weakness, What is it?

[trixi138]

I am a 26 y-o- Female. For the past 3 months now I have been having strange symptoms like nausea, dizziness (extreme at times), headache behind the eye and sensitivity to light, joint/muscle aches and stiffness mostly in hands and feet but occassionally like a full body flu-type attack, weakness in wrists, cold feet and hands that feel like they are plunged in ice water whenever I take a hot bath/shower, constant feeling of cold so that I just can't get warm, occasional hot flashes and chills, exhaustion and sleepiness all day but hard to stay asleep, and memory problems/disorientation like a brain "fog", flashes and shadows out of the corner of my eyes, and some other symptoms not listed. I have a history of Graves Disease diagnosed at 12 years old and treated for several years with PTU. I had a relapse at the age of 18 and had radioactive ablation of the thyroid done. I have recently seen a rhuematologist due to a slightly elevated RH factor (14) and he drew more labs to detect Lupus and other autoimmune connective tissue disorders, all of which came out negative or normal including the CCP test for rheumatoid arthritis. Though my TSH levels have been hard to keep stable (recently miscarried at 8 weeks with a TSH of 40), this last test was normal (Currently taking thyroxin 100 mcgs and Cytomel 10 mcgs) including antibody and FT4 and FT3 levels. Blood count and lIver tests were also normal. Xrays of hands and chest were normal. Opthamologist visit reported normal eyes except for slight dryness. Other than these, I have a history of repeated low vit D levels, atypical PCOS as determined by cystic ovaries on ultrasound and borderline insulin resistence, but no androgenic factors. I go to neurology in a month's time and also back to rheumatology. I know there are autoimmune disorders of the nervous system that can cause some of these symptoms, but I have not noticed numbness or nerve-like pains or extreme muscle weakness that seem to be found in most of them. I know it is possible that I have the early stages of rhuematoid arthritis as I do have a family history of it, but some of these symptoms don't seem to fit. Any ideas about what could be going on with me and further testing I need to pursue? Thank you.

[Scaredmomma85]

Sounds sooooo familiar!! Have you had incontinence issues here and there? Hard time getting words out? I think I'm right there with you but with no answers :(

[Sashagirl1305]

Hey i know this is an older thred but I literally have every one of your symptoms down to the mouth tingling. I am starting the whole go to every doctor and take every test thing. Everyone thinks its my anxiety manifesting in a different way but I think there is more to it. Any any any info or advice you could relay would be much appreciated. Hope you are feeling good.

[Ariellei]

I've been having the same problems to and I'm only 16. And I can't see a doctor or a anything. My mom left me a year ago. Idk my life just *****. But for two weeks I had acid reflux straight and everybody kept thinking I was pregnant took 2 test one positive one negative. So I'm gonna wait a week. My symptoms I've been having nausea lightheaded dizziness having throw up or anything but last night all of a sudden my hands and feet start to swell up and I have no clue why can anyone help me?

[jlgriss08]

It is so weird reading these posts. I have to mention that I too have recently had a lot of the same symptoms. I have felt crappy for months and no one can help me. All blood tests were normal except low vit d. they did not do an ANA, urinalasysis, or any type of test to check my kidneys.

My symptoms:
weight loss (30+ pounds unexplainable and continuing to lose)
anorexia
low vit d
hair loss
rash on face limited to right side of face only
headaches
nausea
cough x3 months
swollen lymph nodes
sores on top of my lips and inner lips near teeth
muscle cramping
joint pain (no swelling)
left hand feels like i put it in a bucket of ice water and its painful to pick things up or make a fist
chest tightness x3 months (normal chest xray)
rash on arms and legs (does not itch, but is scarring)
sensitivity to light and eye pain
dizziness/lightheadedness
jaw pain
ear pain (ringing in left ear occassionally)
hotflashes
weakness
fatigue
insomnia
unexplainable bruising that takes forever to go away some bruises i still have x3 months
occasional sore throat
occassional pain in left side/left abdominal area (worse during menstruation
constantly feeling sick and short of breath

Can someone help I feel like no doctor will help me and they all give up on me because they cant seem to figure out whats going on.

[connie6816]

I have some of you have too joint/muscle aches and stiffness mostly in hands ,elbows and  feet , weakness in wrists, occasional chills at sleep , exhaustion and sleepiness,painful lumps show in my legs ,I have 29 blood test done, some of then show up Lyme diseases 3.10 +,RA +, going back for more because this is not the final diagnose,I have my lymph node remove under my arm was very painful and swollen so they think what i have have to do with this infection on my body.still they can't tell me what i have.Good luck for you, i hope everything work OK for you.

[Kerkathleen]

getting tested for lames is quick and easy blood work. I had to get tested bc i lived in NJ for 25yrs which is the worst place to grow up besides living in the woods

[Vf2876]

Hi Trixi'
Just read your blog, i'm not a doctor or anything special like that. I am 43 and recently was diagnosed with MS- Multiple Sclerosis. Have you looked up the symptoms? Your Neurologist can help you find the answers.
It hits usually between the ages of 20-40.
I originally went in due to severe muscle spasms in my upper back and neck that I just woke up with 3 weeks prior to seeing her. So she gave me trigger point injections. We had talked about a C-spine MRI cause Stenosis runs in my family. When I got off the medical table I had to catch my balance and she asked me what was that, is it from sitting on the table to long? I told her no I have been having problems a lot lately. So she had me do a balance test, she told me what to do, as i did the test i fell backwards she ran to catch me. This prompted her to have me do it again but she stood right there that time again back I went. She had me do 6 of them the same thing over and over I failed every one. plus she had to remind me 3 times how to do it. She than said instead of a C-Spine MRI I want you to do a head MRI.  My MRI came back white spots possible early signs of MS. She than sent me to Neurologist who did a blood panel and much more plus a full spine MRI+Deep Scan Head MRI( the first one was missing a section of my brain so I had to do a deep scan), lumbar puncture. If you are already set up for a Neurologist than I suggest you ask about MS. MS has Many Symptoms. They can order all the tests. Do you have balance problems? Doesn't mean you have MS but its does cause dizziness so do Migraines. I suggest if your symptoms continue or get worse go back to your primary care doctor. Or try to get into your Neurologist sooner.
What made me want to respond to you were, flue like symptoms, Vitamin D deficient. Plus your various degree of aches and pains. I do get Migraines that cause dizziness, nausea, fatigue, light sensitivity, but they have increased since my MS symptoms started hard in November 2011 to where they were debilitating.
I wish all the best sweetie!