Okay so I finally got my blood work from my Rhumie. And tested neg for anything he said he could treat me for. My Complete c4 serum was high along /w complete total. My C - Reactive ptorien was also high. My MCV &MCH were low. My RDW was high. He had no explanation for my swelling or pain. And no advice on how to see next. Im very fustrated and would like to know ur thoughts on who i should see or get tested for the swelling and pain discribed before in my hands & feet.
The immune deficiency foundation at primaryimmune.org has tons of information on immune deficiencies. They have a great web-site and wonderful people to talk too. It is all free. Look at the publications they have and they can suggest tests to rule out or confirm different types of immune deficiencies. Last I heard they think there are 185 different ones they know about. Depending on your blood work you can go from there. The IDF also can recommend immunologists in your area who are familiar with immune deficiencies.
Good luck and keep us posted.
elbamom
It is no use speculating on your symptoms until you have had blood work. Nothing in particular comes to mind for me. I can't believe a doctor would put a patient on prednisone without doing any blood work. Honestly, I feel that is neglectful.