Aa
lymphocytic hypophysitis
Hi all,
I was recently diagnosed with lymphocytic hypophysitis following transsphenoidal pituitary resection surgery on what was thought to be, at the time, a pituitary adenoma compressing my optic nerve. Does anyone here have any experience with this? I'm interested most in recurrence rates and in hormone replacement. Prior to surgery, I was hormonally deficient across the board; I'm currently trying to wean from post-operative hydrocortisone and struggling with it, which my doctors all say might indicate SAI. I'm also taking levothyroxine which, after pushing me into hyper for a few weeks, I seem to have stabilized with.
Really any information related to this condition would be helpful; it's hard to find any first-hand information out there!
Thank you!!
I was recently diagnosed with lymphocytic hypophysitis following transsphenoidal pituitary resection surgery on what was thought to be, at the time, a pituitary adenoma compressing my optic nerve. Does anyone here have any experience with this? I'm interested most in recurrence rates and in hormone replacement. Prior to surgery, I was hormonally deficient across the board; I'm currently trying to wean from post-operative hydrocortisone and struggling with it, which my doctors all say might indicate SAI. I'm also taking levothyroxine which, after pushing me into hyper for a few weeks, I seem to have stabilized with.
Really any information related to this condition would be helpful; it's hard to find any first-hand information out there!
Thank you!!
Hi
I have had two lots of surgery over the last three years and radiotherapy this year to treat my lymphocytic hypophysitis. I have recently started with head pain again and some visual field degradation. Do you think I have any treatment options left?
I have had two lots of surgery over the last three years and radiotherapy this year to treat my lymphocytic hypophysitis. I have recently started with head pain again and some visual field degradation. Do you think I have any treatment options left?
MEDICAL PROFESSIONAL
Hi!
Yes, replaces do occur. They have to be managed by medication and surgery. Hence controlled surveillance of the patient is very necessary. Steroids are the first line of treatment. If they fail or cause undesirable side effects then methotrexate, azothiaprine and cyclosporine are used instead. Other than this, most patients need life long hormone replacement therapy. Repeated recurrence is treated with radiosurgery if medical therapies after initial surgery fail. As of now there are no other treatment options. Hope this helps. Take care!
The medical advice given should not be considered a substitute for medical care provided by a doctor who can examine you. The advice may not be completely correct for you as the doctor cannot examine you and does not know your complete medical history. Hence this reply to your post should only be considered as a guiding line and you must consult your doctor at the earliest for your medical problem.
Yes, replaces do occur. They have to be managed by medication and surgery. Hence controlled surveillance of the patient is very necessary. Steroids are the first line of treatment. If they fail or cause undesirable side effects then methotrexate, azothiaprine and cyclosporine are used instead. Other than this, most patients need life long hormone replacement therapy. Repeated recurrence is treated with radiosurgery if medical therapies after initial surgery fail. As of now there are no other treatment options. Hope this helps. Take care!
The medical advice given should not be considered a substitute for medical care provided by a doctor who can examine you. The advice may not be completely correct for you as the doctor cannot examine you and does not know your complete medical history. Hence this reply to your post should only be considered as a guiding line and you must consult your doctor at the earliest for your medical problem.
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