Thanks so much for volunteering your time.
In Jan. 2001 I had 2 "stroke like" events, diagnosed with APLS and Protein C & S Def. No damage seen on MRI, but left with PERMANENT damage - cog issues, processing speed and rt sided weakness,head to toe. Docs not in agreement -strokes were in a place that can't be seen, others say TIA, but I have permanent deficits?
Sadly, I also have fibro, clotting since 15, a radical hysterectomy last year at 46, poor concentration, irritablity, migraines and headaches, chronic dry eye (dx by opthom), spinal stenosis, tinunitus, osteoarthritis, etc. Sometimes with nose and mouth sores, occasionally vaginal ulcers, itching underarms, burning/itch of hands and feet (blister from rubbing in my sleep).
About 8 weeks ago= gross hematuria, no infect, low WBC, high RBC and protein. 4 weeks ago dizzy (not vertigo) after 48 hours had my husband take me to dr. wound up in the hospital - couldn't feel any contact between my left foot and my shoe, weakness in left leg, then arm, the the left side of the face was zapping with electricity... including the tongue. Extremely similar to "strokes" of 2001, still nothing on CT sacn or MRI of the brain. In the ER my BP was 70/53. Tingling, facial spasms, dx with "mental status change/ cognitive decline."
Last week, resting heartrate of 120 bpm, BP up and then plummet again, wound up in ER Friday night, waiting to find out what is going on. Now have SEVERE fatigue.....
clues? echo cardiogram a few weeks ago showed "prominent lung artifact", corrected from "difficult to read due to breast implants". Getting it repeated elsewhere. Maybe something in lung is pressing on the heart and esophegus? feels weird- I take protonix for reflux - more like a full feeling, to top of gullet. Also enjoying (!) a metal taste in my mouth. Seeing PCP tomorrow and Urologist Thursday and Neuro Psych Re Eval on Friday..
Thanks for your help!!!! ps sister with RA