Headaches after blood patch

[danknshannon]

Male, 36, palmerton - PA,
I recently got diagnosed with sweet syndrome. I was in the hospital for almost 2 weeks. The doctors didn't know what was wrong and preformed a spinal tap and several other tests ,ct scan . They came up with nothing. finally the figured out what was wrong and treated me  with prednizone. After some of the spots (Bumps) healed (about week or so later) they decided  to preform a blood patch because i was having sever headaches. After the blood patch the headaches went away. But soon returned after i went home. I also have pain in my right arm. Is it normal to have a headache return after the blood patch.? Should i seek med attention ? (headache is the same as it was before the blood patch. During my hospitalization I had  a temp of 104 for about 4 days (fluctuated). They had me on 4 different antibiotics morphine ,toridol, and duladid. I didn't eat for 7 days straight.  It started with my lymphoid in my groin hurting and swelling. the rest of my body started to swell and i was not able to even walk. After all of this I'm not my self. I feel like a 80year old man trapped in side of a 36 year old body. I was strong as a bull now i am very week. Is this normal as well. And how long will it take me to get back to my normal self .

[Garth L Nicolson, PhD]

The signs/lsymptoms of sweet syndrome are similar to those of a person with one or more chronic infections (fever, skin rashes, fatigue, painful joints, sore eyes, mouth ulcers, etc.).  Treatments often include corticosteroids to suppress immune responses and other palliative treatments that suppress symptoms but don’t do much to treat underlying causes.

If you have identifiable infections that underlie the condition, and these can be successfully treated, this would likely be the best long-term approach rather than just treating symptoms.

[ShadowsSister]

Hi, I belong to the MS Support group, I was sent your post through our forum. I had never heard of Sweet Syndrome. So I did a google search and pulled up the Mayo Clinic site at
www. mayoclinic.com/health/sweetsyndrome

If you haven't already checked out this site, they offer a lot of information about this. It might be helpful for you to see if you can use any of this information.

I am so sorry for what you are dealing with. I will put you on my prayer list, once there you never get removed.

I use to live out side of Pittsburgh many years ago. I still miss it. I am praying that you will regain your strength and start to feel like your old self again very soon. I know it would help if you could start to eat regular 3 meals a day again and the sooner the better. Please make sure you keep all of your Doctor appointments and if you notice any thing changing call the Doctor right away so you can get it checked checked out.

Regardless of what illness we are facing we have to take control of our health care. We are in charge of any and all treatments, check out the medications both pro and con, You will be the one to decide what course you will take. Our Doctors are making suggestions based on their knowledge and/or info from the drug companies.. So it is up to US to educate ourselves as much as possible..

I hope you'll decide to keep in touch with me, I'd like to know how you are doing and to offer you my support.. I have lived with Chronic Progressive MS for almost 24 years now..
I have learned how to deal with life by living in Today, I do my best not to look into the future, for no one knows what tomorrow will bring...

The best of luck to you, I'll wait to hear from you. Sending you gentle hugs on the winds daily, so when ever you feel a breeze consider yourself hugged by me {{{{{~!~}}}}} DJ