Avatar universal

Pedi: 2nd Case EBV six months and or 2006

My son is eight years old.  He has just received his second positive, active EBV test in six months.  He's very lethargic and not feeling well, and has a sore throat and headache.  He also has low IgGs.  He was born with low IgGs and if he had one more low he would've been severe combined.  He had ENT infections every two weeks from birth to three as well as pneumonia and upper resp. infections.  In 2006, my son also had extremely swollen tonsils (about a straw's width in between), and his neck was swollen like a tire due to swollen lymph nodes.  Texas Children's Hospital wasn't concerned about the reasons behind the swollen tonsils or neck, and discharged us to walk across the street to see an ENT about the surgery.  He has continued to have occasional swollen lymph nodes and has started having severe sinus infections every four months again.

His pediatrician wasn't concerned about the second positive active EBV in six months (yes, it showed the past infection too) and the low IgG.  I asked for a referral to an Immunologist.....she didn't want to do it.

My son is also a child with Autism, so recurrent EBV is really not helping with school issues, etc.  

So my questions:

(1)  Could the 2006 swollen tonsils have really been a result of EBV way back then?  If so, what's up with the active cases now (two this year) and where do we go from here?
(2)  Should I follow up on two active cases in six months (and that he's not up to speed)?  If so, do we follow up with an immunologist or whom?  Living in a big city means long waits, and I'd rather get it right.
(3)  What can we do about it?  

UPDATE:  I just found out that I can't get into an Immunologist here in Houston until next year - like Summer.  His pediatrician isn't too enthused to help out either...even when I layed out his history before moving to Houston (severe combined), the massively swollen tonsils in 2006, the recurring sinus infections, or this recent bout.  

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642304 tn?1242606724
Instead of EBV, you might look into an infection that we know causes morbidity-- Mycoplasma, such as M. pneumoniae, one of the most common infections in Autism Spectrum Disorders (Nicolson GL, Gan R, Nicolson NL, Haier J. Evidence for Mycoplasma, Chlamydia pneunomiae and HHV-6 Co-infections in the blood of patients with Autism Spectrum Disorders. J Neuroscience Res 2007; 85:1143-1148).  This species of Mycoplasma is also the most common cause of atypical pneumonia and ENT infections in children and can cause all of the symptoms that you report, and others.

In the Houston area, Dr. Kotpotter of Sugarland, knows about this in children and how to treat it.
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Avatar universal
Bless you (!) for that answer *and* someone I can give a call to (which I will first thing in the morning)!!!!  

Thank you, thank you!!!!

Helpful - 1

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