My name is Lesely and I am 42 years old. Six years ago i became sick with a debilitating illness in which doctors could not find an answer to.. Before i got sick I was trainning for a half marathon and was extremely active. For the first year symptoms of crushing fatigue, muscle twitching, pin ***** in my legs and electrical shocks came for six weeks then left. Between episodes I was still able to train and run. Dec 04 an episode came and has never left.
My test were done at the Leahy clinic in Boston. I had several MRI's done of brain,neck and spine...all totally clear. My Lumbar Puncture was also clear. All EEg, evocked responce and other tests were clear.
In 2006 I did an Igenex test: IGM +31, IND 39, IND 83-93. IGG IND 23-25, ++30, IND 31, IND 34, IND 39, ++41.
I then went to a LLMD who I have been seeing now for almost three years. For the last two and a half years I have been on Ketek ( twice a day ) , ceftin ( twice a day), diflucan( once a day), plaquenil(twice a day) and pantoloc. I also take ton of acidophilus. I wennt off all of them the first of July this summer. I am quite a bit better but still suffer from extreme fatigue,and muscle twitching.
I am wondering if you think I should try some other antibiotics? I am still far from what a 42 year old should feel like but truly think the ketek and ceftin are no longer working for me. At what point do I stop taking antibiotics? Any suggestions would be greatly appreciated.
Thanks so much for your help.
Lesley