Hello dr nicolson,
Thank you for your time answering the my post.I have heard this before from people on forums who have had neurmyotonia that they felt better on a certain antibiotic i dont understand this at all but will look on the site you mentioned, there is such lack of any information on this condition and what causes it and how to treat it.
samantha
Neuromyotonia is a vague and generally not well-understood condition that could be due to a number of factors, such as neurochemical exposure, chronic neuro infection, neurotoxins, etc. Patients with such problems often are often eventually diagnosed with atypical ALS and other neurological diagnoses. When neuromuscular problems are present with no known etiology or exposures, we generally look for neurotrophic infections, such as Lyme Borrelia, Mycoplasma, etc. Such infections can invade the peripheral (and central) nervous system and cause all sorts of problems in nerve transmission and excitability. Usually such patients have major relief of signs and symptoms if the infections are properly treated. Unfortunately, in the UK there is not much in the way of expertise on the type of infections that could be involved and their treatment. More information on chronic infections and neurological and neurodegenerative diseases and their treatments can be found on our website, www.immed.org