pots syndrome/swollen lymph nodes connection?

[bear_mia]

I have pots syndrome.  In September I broke out with what was thought shingles on my scalp.  It lasted longer than shingles normally would and then traveled to both my shoulders, then to my upper back and finally one hip.  Now I have the same itchy, nerve sensitive rash on my shin.  Had the same rash on my opposite shin last year.  About the time the scalp was clearing up and before the shoulders broke out, I found lumps in my lymph nodes in my neck.  GP thought it was from the shingles rash but since I then broke out further I realized that it wasn't shingles.  I still have very painful swollen lymph nodes and they swell and go down (although not completely) every day.  They are getting worse and I am extremely fatigued.  Could the pots syndrome be progressing into something more?  Am seeing my electrophysioligist on Feb. 1st.  He is out of town until then.  Perhaps calling my GP again.  I just don't have the best health care coverage and am trying to limit doctor visits but am getting quite concerned.  Any suggestions?  bear_mia

[mixedblessings]

A related discussion, is autoimmune a primary or secondary illness? was started.

[Garth L Nicolson, PhD]

Such rashes are often caused by cell wall deficient bacteria, such as Mycoplasma and other bacterial infections.  These are often found with viral co-infections.  You can read more about this on our website, immed.org

[bear_mia]

Thank you Dr.Nicolson.  What do you mean by other co-infections?  I did see my GP who said that the rash wasn't shingles...didn't look or act like shingles-duration too long and jumping around my body.  He felt my lymph nodes were not inflamed as much as just causing a lot of pain.  Sending me to a rhuematologist-might be fibro or rhuematoid arthritis.  Prescribed elivil anti-depressant for the uncomfortable pain and sleeplessness.  Had blood work done this morning-ana-sed rate-and something else.  If you or anyone else has any suggestions or advice to lessen feeling so awful I would appreciate the help.  Anne

[Garth L Nicolson, PhD]

Shingles, caused by herpes zoster virus.. HZV virus can persist, but remain inactive, in certain nerve roots within the body. If it becomes active again, usually later in life, then it can cause a variety of problems.  It can also co-exist with other infections, complicating diagnosis and treatment.  When systemic signs and symptoms slowly become apparent, to me it suggests that there are also other co-infections present.