Sounds like you have a lot to juggle. Hope you can find a new rheumy soon. I'm having the same problem with my cardiologist. He is not thrilled about treating POTS. I can tell he gets frustrated at the complexities and challenges.
Great to hear from you! Good you got to take a trip, even if it means extra sleepy time spent recuperating. It's important to still get out and do things we really want to do, right?
I'm glad you made it through your surgery, but I imagine the recovery must be rough with all the health issues you are facing. I will be keeping you in my thoughts.
What is it with these docs that are either losing interest in us (or never had it to begin with)? I seem to be seeing a trend of that over the past couple of months with members of our community having strained relationships with their primary diagnosis docs for that reason ... not sure if I'm just noticing it more or if there's really an uptick for some reason? Maybe even doctors get restless with their own version of "cabin fever" in the winter months.
I know how tough SLE (and all the comorbid diagnoses that can trail along for a ride) can be ... I have a beloved family member with it. Please PM me anytime you just need a shoulder to lean on. Chronic illness is chronic illness is chronic illness. We're all trudging down this path together, for better or worse.
Heiferly---I don't know what is going on, but like you I have noticed more and more people having trouble with their drs.
I'm doing pretty good after the surgery, but I'm still having a lot of pain and swelling. can't twist or run, stuff like that.
Maybe it will all get better soon for everyone.
Big Hugs back to ya'll.