I am 14 years old and was diagnosed with POTS almost a year ago, since then I’ve been on many medications and treatments which has not helped any of the problems. I’ve been on Fludrocortisone, Midodrin, Propanolol, nadolol, and some anti-depressant that is meant to cure headaches and help with my mental health during this hard time. Since my diagnosis I’ve been in the hospital 5 times, one being a 4 day admission. I’ve also suffered from, nausea, headaches, Severe and constant chest pain, low blood pressure, and high heart rate. Usually my heart rate is around 110 while laying down and will rise to190 while walking around. Things have gotten really bad. I’ve been out of school for almost 4 weeks now. My doctor has no clue what to do because none of the medicines have made any difference, I drink 100 ozs of water a day, I eat healthy, I have my salt, nothing is changing! I go to a school for the arts and my major is dance, so I haven’t been able to dance for almost a year as well. Life has been very troubling. My point is, my newest symptom are these blackouts, they happen 30+ times a day, and it lasts a few seconds. The first time it happened I was at school and fell back and hit my head really hard on my locker. Basically I lose consciousness for a few seconds, I’ve passed out before but this isn’t the same. My mom is a nurse and thought it could be Absense Seizures so we got an EEG but it came back normal. Could it be from the lack of oxygen to my brain or blood circulation?
I appreciate your help, life has been so hard and no one seems to understand what I’m going through.