Beep, Beep, Jump on the bus for the week of 8/22/10

[tonyad]

   Hope everyone has had an awesome weekend!
Here we go again....Another week is hear. hard to believe!

   ANyone have anything they would like to share for this coming week?
Appt's, vacations, rant, praise, all is WELCOME  :)

Monday = Rest
Tuesday = eye appt
Wednesday = Hmm, I need to look at my date book to tell you the rest
as the ol' memory constantly fails me....Lol

    Anyhow, I hope that everyone has a Terrific week full of wonderful days. Remember
to take time to smell the roses and look at the squirrels running up and down the trees
chasing each other, and the birds chirping.  

    Of course this may have to be done inside looking through a window becasue of the "Heat" lol
But.....if late in the afternoon you can sit outside for a few....Then Enjoy!

<>
~Tonya

[beema36]

Tonya- Thanks pm u back I hope. I am so computer illiterate:) never know for sure what I have done on them.

[tonyad]

   I am sooo Sorry you are in so much pain!
I left you a PM so I did not hijack this post...lol

~Tonya

[beema36]

Tonya- My legs r very weak, nerve conduction bad, spascity( sp?), burn is bad esp knee down. In Church yesterday I actually looked down to see if my slacks were on fire the burn was si bad.  They just won't home me.for long and.I.can't be on feet long or will have presyncope or syncope if.I don't get down. Am getting so I am afraid to go anywhere. I still take rebif injections but neuro says they aren't working thus his recommendation of tysabri. I don't take.things like.neurontin, bacloban sp? etc as.I have had some bad reactions to them. The burning pain in legs is becoming so bad tho I can't sleep. To top it off last night we had an attempted break-in at 2 a.m.(thank God for security system) and did major.damage to house so we have spent the day trying to fix things. I try to help but am pretty useless as just can't.do much without falling over ir passing out.:( Guess it will be one day at a time thus week. Last night was a real stressor.

[tonyad]

Amo:
    i'm Liking and certainly 'Understanding" your week oh so well!
I like how you put it into words......I may even copy it one day...Lol
how true it is though!

Heiferly: So glad that you got to attend your support Group. It truly does make a difference when you can be actually face to face with others that walk in your own shoes!

Beema:  Hope your legs will give you some relief soon. I know that feeling all to well. Do you know why they are being so problematic to you?  Do you take meds for this?

Hugs to each of you,
~Tonya

[beema36]

Amo
Thanks. Sounds like we will finally.get cool day tomorrow down to 80

[AMO]

thanks tonya,
this weekend was fun (exausting!)
so today iis beddy by day :) I 'll try to sit outside a little for some fresh air
feel so guilty when  it is coming on fall aand know i'll be shut in for winter

monday ,MIL has surgery so wait for new how it's going.
then tonight having girl time with my daughter and smutt t.v. LOL

tues, have to folow up on things i should have weeks and days before
wed ,feel guilty about tuesday not getting anything done
thursday, deciding to get ONE thing done and resting
friday, realizing end of week is not a good time to get things started LOL
ha! it is a viscous cycle:))

stay cool beema and heiferly support iis a good thing!
amo

[Heiferly]

My cardiologist is supposed to be back in the office today, so I'll be waiting on a call from him this week.  Other than that, my biggest plan is looking forward to Thursday:  the high is only supposed to be 73 degrees on Thursday!!!  If I could push my bed into the yard and nap outside all day I probably would, LOL!

Yesterday I went to a narcolepsy support group meeting for the first time, and that was really cool.  It was the first time I'd ever met any other people with narcolepsy in real life, and I have to say there was something really nice about having people there face-to-face who can relate to the same types of experiences.  It made me wish that all of us lived closer together so we could meet up.  I bet we'd all become fast friends!

I hope everyone's week is off to a good start,
Heiferly.

[beema36]

My legs are not behaving ( burning so bad and feel like limp noodles)so will sit in my yard when it cools down each day and.watch the birds.  We have had continual over 100 degree days this summer but Tuesday is to be in 80s so that will be nice:) Then back to hot weatherman said.
You all have a good week.
Beema