I will have the doctor run a potassium level again. Thanks for that tip. His rash is still there so I am almost wondering if some of it is due to the increase in the midodrine. We see the cardio ep on Monday and I'll ask him. Thanks for the links, too.
If he is experiencing an increase in heart palpitations while taking Florinef, I would recommend asking his doctor to check his Potassium level. Florinef can deplete the body of Potassium, which can cause all sorts of unusual side effects. Not to mention the fact that patients with Dysautonomia are notorious for being particularly intolerant to any electrolyte imbalance.
The reaction you describe does sound a bit more like an allergic reaction though. It may be that he will need to use another medication.
So the doctor said to stop the Florinef for a couple of days and then re-start it. His rash is all over his body and his heart rate is messing up again, he's having PAC's. My son also told me that last night he woke up and needed to go to the bathroom but couldn't get out of bed. And the doctor said no school until January, that he is too unstable.
Thanks everyone. I called the doctor and he said to keep taking it. I cut the dose in half yesterday and he didn't have the chest pain but he was very tired. Then this morning his BP was back down again. So I don't know. We go back today for a check up on his nose. What a nightmare.
I had some mild skin stuff happen to me for a while when starting it, so I can certainly believe that it could do something worse to the skin on rare occasion. I ramped up the dose slowly which might have helped. I don't know which kind or what extent of reaction is advisable to tolerate and which are serious. Gonna have to get hands on doc opinion to pin it down...
I was on these and they just made me dizzier. I never experienced any of the symptoms your son is. I would do as laurab2818 has advised and call a doctor, this should definately not be happening.
I hope he is okay, please let us know.