Marie-this is wonderful news! I am so glad u finally got an appt there and are having testing done. I am excited for u. This will give u more pieces to.the puzzle. Thanks for the advice. It will be helpful to many of us. I am thinking one day I may need to go to one of these places if my electrophysilogist here isnt able to help me more.
Let us know what u find out. Good thoughts are with u. I am sure many here can give u some great advice.
Thanks! I feel some relief at knowing I will get good testing and direction. So much of the journey has had it's frustrations but I feel in a better place now.
I always appreciate your comments. :) Marie
Marie- I appreciate your.tips. I see my electrophysilogist a week.from now and.if I can't get better answers this time I will.try to go to Mayo. I know there are no magic answers but want to be sure I have followed all avenues before I accept this is the best it can be healthwise.
don't check your medical records with your luggage! At least take just that as your carry on...
I see you got your appointment-that's great. Please let me know if you have any questions. I hope Dr. Goodman is as helpful to you as he was to me. And you'll love Mary, she does the Qsart test-if you have to have that done. I'm supposed to have my spinal tap this month but chickened out. Let me know how it goes for you. I would rather have it done at Mayo but my insurance doesn't cover it. I have to schedule it after the 1st of January-am doing it at home in Vegas. Didn't want to have to worry about it before Christmas. So it's my new years resolution to get it done. Hope you get some questions answered and can find a solution. Dr. Goodman was actually with Mayo in Rochester for a short time, so he has lots of great experience and access to lots of great docs in Rochester as well. Have a great day.
LaLa4...Great advice for sure!
tkimber...thanks for the information on the testing!
I am just starting to plan the logistics of my trip. It is a ways off but somethings I need to plan early. I think I will post about spinal taps and see if anyone knows how not to get a headache. Marie
That's great! I have many patients who love Mayo in AZ! They are amazing