Autonomic Dysfunction Community
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PAF meds

I started with symptoms of Orthostatic Hypotension (OH) and extreme fatigue at age 11.  I am now 69 and was finally - 6 weeks ago - diagnosed for Primary Autonomic Failure.  My doctor prescribed pyridostigmine for my OH but the insurance (Medicare/Silverscript/CVS) refused to pay for it saying that OH is not a disease.  I guess that if he had written it for PAF they may have said "this is not a curable or treatable disease" and therefore deny it, too.  There are too few PAF patients around to ask if they have a similar experience.  Therefore, I ask if you would be able to tell me why this happens?
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