I have been experiencing issues since I was a teenager. I am now 38 & still undiagnosed. I should find out on Monday 8/11, I should be finding out when my appointment times are. I will be going to The Cleveland Clinic. The dr there recommend me to see: Neuromuscular, Brain Center, Syncope Clinic/Cardiology, Gastroenterology & General Neurology. I assume they will do a TTT, which worries because my last one was inconclusive as they couldn't read my BP or pulse. I was diagnosed w/Postural Hypotenstion when I was 15 or 16, but these past several years, new symptoms pop up every time I turn around. Falls, bradycardia/tachycardia (had a defibrillator/pace maker implanted in August of last year. Severe digestive problems w/severe weight loss, I got down to 92 lbs & although I'm at 105 now, it just keeps going up & down, but mostly down.
My question is, what am I to expect from the tests? I know it will not be fun, but I have NO clue what to expect & I am terrified & alone. Even with my family around, I feel like no one understands, they all are tired of taking care of me & that i am a burden. I've pretty much lost all of my friends due to my health, & the couple friends I do have live in another state & just aren't there for me in ANY kind of capacity, not even just to vent to someone.