This will be long so please bare with me. I am a 30 year old married, female with no children that has not found ANY relief over the last 20 years of doctors visits and investigations.
When I was 11, I started showing symptoms of severe IBS. It went undiagnosed. I lived with it painfully for about 8 years.Fullness, bloating, diarrhea, constipation, sharp stomach pains, dull pains, sensitivity to ALL foods, etc. When I was 18, It came back with a vengeance. They ran several tests on me, but everything came back normal.
When I was 21, it has progressed to unbearable. The stomach pains were crippling.I would feel full after only 1 bite of food, etc etc After upper GI's, blood work, and ultrasounds they found that I had massive Gallstones and told me to remove my gallbladder.(I was 21, and 105 lbs with no children. The opposite of every typical gallbladder patient) I was told this would relieve my symptoms. But then after removing it, the symptoms only got worse. Then they found I had the H. Pylori Virus and several large ulcers. So I was given treatment to cure them.( I did not receive a follow up so Im not even sure if it worked)
At this point, no relief from my symptoms has ever occurred. So I have been living with it without any form of medication for years(because everything I was given did not work). My other symptoms have included severe fatigue and weakness, Body Aches, and in the last 6 months syncope with orothostatic hypotension or possibly vasovagal syncope. I really received no information specifically as to what was going on. They attributed it to dehydration (but I haven't been dehydrated for 20 years). I was givingXanex for aniexty even though the only thing I feel anxious about right now is fainting and not knowing whats going on with my body. My husband seems to think the xanex helps me relax when we need to run errands or leave the house but I still end up with symptoms. I do not have POTS according to the cardiologist I saw. However, I did faint during the first 15 minutes of my Tilt Table Test and I was unable to continue. All EGG EKG, holter monitor tests were normal.
Now at age 30 my symptoms include on a regular(usually daily) basis of IBS, severe fatigue and weakness, dizziness, strong sensitivity to heat, inability to stand for long periods of time or sometimes not even for a few minutes. Strong bones/body aches. Headaches, pre-syncope. I am also very prone to UTI's. For a while, I was having 1 a month for about 8 months.My doctor just recently ran several blood tests, all normal. No Celiacs, No Crohns, no allergies. We just completed a 24-hour at home urine test, that also came back normal. The only actual result I have gotten is that I am Vit-D deficient and my B12levels are low. So Im taking 50,000 units of Vit D once a week, and a daily b12 vitamin.
So for the last 6 months, I have not been working or driving a car(I was pre-syncope while driving one day, so we deemed that unsafe for me for now) I am spending 99% of my life at home as I am afraid to activate symptoms of fainting when I go out.
With the IBS combining with the orthostatic hypotension, I am wondering if I have some form of Dysautonomia or if anything I have mentioned can be linked together somehow. Between the h. pylori, the gallbladder removal, IBS and the newly Syncope.
Oh, also I eat pretty healthy. I juice 2x a day about 4 days a week.I don't eat fatty foods. I have increased my salt intake. (with the IBS though, Im not sure what good any of it does because I am sensitive to EVERYTHING. nothing can be ruled out as safe.)
Am I just a horrible mixture of bad genes and back luck or are any of these things linked?