I also live in NC and tried to get a referral to Dr. Klein. Same issue with her medical leave. My neurologist insisted that I go to the Mayo or Cleveland Clinic. My insurance would pay, so that's why I chose Cleveland. I live in the Charlotte area and found it very difficult to find any kind of doctor that could treat me. I have orthostatic hypotension, not POTS, but I would not give up and would accept the referral to Duke or UNCCH since your insurance would pay.
I am going to go to UNCCH and see another electrophysiologist. I really feel like I need a neurologist, but I am going to give the UNC cardiology clinic a try and see what they have to offer. At least I will be getting my foot in the door at a university medical center and maybe if I need to see another specialist they can help me with that. I go on July 14, and I am glad that they got me in so quickly. I just wish that autonomic neurology wasn't such a rare specialty with doctors few and far between ! Thanks for your reply !
I think you are doing the right thing by getting into a research hospital. Good luck!
Our daughter has been under Dr. Kline's care for 4 years .. we, too, are searching for another physician who might be able to help in Dr. Kline's absence. Have you had any luck since your last posting?
Hi, my name is Diane and I live in Monroe, NC. Do they have a P.O.T.S. doctor at Duke? I can find no doctor for pots anywhere close by.
Ronald Kanter (MD) at Duke is a pediatric cardiologist who treats patients with dysautonomia. Sonia Rapaport (MD) is a holistic/integrative physician at Haven Medical in Chapel Hill who treats patients with dysautonomia and looks at nutrition, movement, supplements, etc. She's connected to Familial Dysautonomia Hope Foundation. Tom Motyka (DO) is a family physician in Chapel Hill who does ANSA testing, but doesn't have a dysautonomia specialty/interest as far as I know. As far as I know with Dr. Klein out, they're the only dysautonomia-aware doctors in the area.
Dr Afrin is in Charleston, SC may be one to look into seeing.
My husband also has orthostatic hypotension. We have been to Mayo and Vanderbilt. We need someone to treat him now. Do you know of anyone now that Dr. Kline is no longer available. It is not feasible to travel from NC to Tennessee or Florida for medical appointments if someone is available in this area or even this state. Please reply . Thanks
For a child or teen, Dr. Green at Levine. I didn't mean to rhyme but it just turned out that way. He is on short term leave until Feb. 20.