Angel Day: March 13, 2010
Laylah Mary Margaret was born still at 22wks.
Born: September 22nd 2009.
Laylah was diagnosed with a "rare" genetic disorder known as Meckel-Gruber. I'm not sure how rare it is as we are finding many people who have experienced this as well.
Jacob Richar Bourque @ 37 weeks lived for 16 min
Born : Dec 13 2009, 3:54 pm
Died : Dec 13 2009, 4:10 pm
He had Meckel-Gruber Syndrome anyone else with this syndrome?
Angel/ Birthday: February 11, 2010
Angel day- January 7, 2010
hope all is well with you and your family, my heart goes out to you.