Is motor neuropathy the cause of my symptoms

[fay57]

Hi , I have been diagnosed with a non progressive motor neuropathy althouogh the EMGs do show some slight changes . My problem is that I wake every morning With unbearable painful spasm in my lower back which radiates around to my stomach making it a solid wall of muscle . I have great difficulty getting out of bed and often my legs feel as if they wont support me . I am on fentanyl patches , cocodamol and clonazepam .  I see a neurologist who hasnt offered me any treatment and passes my symptoms off as of no consequence.  I also have a small cervical syrinx and spondylosis, have had surgery for thorasic outlet syndrome . On bad days I feel exhausted and drag myself around doing the things I have to do , Mostly I push myself to the limit and also have a part time job . For the last year Ihave noticed difficulty getting upstairs, out of the car and rising from a sitting position  . I have had the emg repeated but have not had any results yet however the emg dr did say that there were a 'few little things'  !!!  I am really fed up because I just feel that unless somebody sticks there neck out and just tries some treatment I will be like this forever. Can any one suggest  a way forward  ,  regards

[fay57]

I am so sorry about your app this morning, I have had many similar ones and it is very upsetting . I dont know the answer except to go to your GP and try some different  pain meds ie fentanyl , this is the only one that has given me relief . It has a few side effects to begin with but it really does work . I always thought your health system was better than ours in the uk is that a joke ?
your EMG results are similar to mine , has any one given you a firm diagnosis or do they evade this to avoid treating you ....
Nobody would believe that this happens in this day and age , it seems that this site is full of people with similar stories to ours . What do these Drs get paid their massive salaries for < I must admitt I am very bitter about it all.
It is really dificult to live life with enjoyment, the pain really drags you down. Do you manage to work or have a social life ? I literally work an hour or two a week now and that is a struggle . I keep any social activities limited to day time as by evening I have had it and just want to curl up and watch the TV . I am divorced three years  so that makes things easier as I dont have to be "alright " for anyone and if I feel dreadful I can just feel that way without guilt. My thoughts are with you and I hope we can perhaps support each other a little , It really helps sometimes to have a good moan to someone who really understands .  lots love Fay

[alannav]

I understand. I have also been noticing difficulty going down the stairs and sitting up. I had another horrible appointment with a neurosurgeon this morning. He literally spent 2 MINUTES with me and said he could not help me and I should go back to my pain management doctor and have a spinal cord stimulator implant. He didn't even do a single physical exam or neurological test. I am SO SICK of these doctors who don't care! My nerve conduction study reported: a decrease in sensory amplitude in the right median nerve. An increase in sensory distal latency in both median nerves, both ulnar nerves and both sural nerves. A decrease in motor amplitude in the right median nerve and left ulnar nerve. An increase in motor distal latency was recorded in both median nerves, both ulnar nerves, both peroneal nerves, and the left tibial nerve. An increased F-Wave frequency latency in the right median nerve, left ulnar nerve, and right tibial nerve. But apparently this along with my 4 years of pain and suffering does not even warrant a physical examination. How do we find a doctor who will provide the treatment we need?!