What do I do?

[leaturner]

Hello, I am a 31 year old female & I am pretty much at my wits end,

I had a car accident about 10-12 years ago & had severe whiplash to the extent where I couldn't walk for about 2 weeks, I had head injury and leg injury.

Over the years I have been getting bad heads, aching all over & sometimes shooting pain up my back which would lead to me having to be pretty much picked up off the floor.
About 2 years ago I started to get headaches every single day, eye pain mainly right eye, this one night I was out with friends & a really funny feeling came over me it was like a creeping sensation across the right hand side of my face & tingling (pins & needles) down my right arm, my friends still remember me now saying I think I’m having a stroke. This started to happen quite regularly.
I went to the doctor & she said I had migraine, well I said I’ve never had migraine like that in my life but I was put on Amitriptyline & just to be on the safe side transferred me to a neurologist.
Over the past few years I have been suffering from the following symptoms:
• Sharp electrical type pain down the top of my back sometime affecting my legs.
• Grating & cracking in the back of my neck from the base of my skull where it  dull aches
• Numbness in face & arms especially right side.
• Freezing feet & hands to the point where I can hardly feel them even though I’m warm myself
• Headaches every single day with shooting jabbing pain in eyes (feels like I have grit in them) especially my right.
• Feeling of heartburn in my back but not! Weird feeling.  Just below my shoulder blades.
• Real aching backache
• Weakness in arms & legs
• Have days where I just ache all over
• 3-4 Day bout of soreness under my left arm with no redness or rash at all, just really tender.

My neurologist sent me for an MRI scan & said that "unfortunately it shows that I have have fluid on my spinal cord & he wished they hadn't seen it???? He said I am not going to record it as he advises I  get myself health insurance (which I now have) but if  my legs go or motions then I need to demand another MRI straight away??,  he then wrote to my doctor saying that it is most definitely migraine,  it really is getting me down I can’t think of anything else cause I always feel ill, I feel that people just look at me like I’m a hypochondriac because there is always so much wrong with me & this week has just topped it off.

Looking back now I have been soooooo embarrassed with everything that I feel is wrong with me I probably have not been honest enough with Doctors.

I was on 50mg of Amitriptyline & I was still getting eye pain, my back went into back spasm about 2 weeks ago & I went the docs & a sports doctor sorted it out for the time being , it’s happened twice now.  I asked if I could up the dosage of the Amitriptyline but he refused & I understand what he’s saying I’m pretty much a walking zombie they make me feel brain numb like I’ve had an anesthetic or something.

I came off the tablets a week ago as I was going away on holiday & wanted to feel awake for it & even though my headaches came on 2 fold I feel it was the best thing I could have done as I had more energy, but the last 3-4 days I’ve felt sick, dizzy, strange feeling, & really bad headaches again 2am this morning I’ve been up since.

I’ve booked myself in at the docs again for Friday but just know they will make me feel like I’m nuts.
I just want to feel normal again I can’t carry on like this I don’t know what else to do?

Help!!
Thank you

[selmaS]

Once u speak to the experts u may want support from others with syringomyelia...stop by the Chiari/Syringomyelia forum

http://www.medhelp.org/forums/Chiari-Malformation/show/257?camp=msc

"selma"

[leaturner]

Thank you for your kind words, don't get me wrong I could be way worse off, but thats the problem I'm scared of it getting worse, i've only just joined this site so thank you for your advice I will try the expert forum. Syringomyelia dose not seem to be something alot of people have heard of in the UK, Thanks again :-)

[soonergalstef]

I am no expert, or even close to one.  However, I read your story and I feel awful for you.  I wanted to write to encourage you to keep seeing doctors until you get some answers.  Do NOT feel ashamed to tell them everything that has been going on!  If you feel that you are being blown off...switch doctors.  You need answers and you need them now!  Your quality of life is definitely not what it should be, esp. for a 31 year-old!!  I wish I could help more, but unfortunately I am clueless.  Have you tried the expert forum on here?  Try that until you can see the doc. on Friday.  Do not give up!!
Best wishes and prayers for you...