craniocervical instability

[blackdog38]

Does anyone have a neck instability called a craniocervical instability?  I am in severe chronic pain with this, and cannot get any help from the medical system.  I am wondering what kinds of things have helped with the pain, or what avenues you have pursued to address it.  Thanks.

[StillLookin]

Hi,
I suffered a backwards fall way back in 2002 and suffered a progressive condition following this, there were many many symptoms including various pains (some excrutiating!).  I endured this state day in day out for at least 5 years before finding a relief, this came in the form of a Philadelphia Collar and Body Brace, fitted by the Spinal Injuries Unit in 2007 - WOW what a difference this made!!!!  It resolved much of the pain issues with immediate effect and over time diminished many of the symptoms to a tolerable level. I wore this 24/7 for 3 years (it was classed as the conservative method of treatment), I now just wear the collar part 24/7.

By 2008 I had taken myself across the Atlantic from the UK to the TCI in New York, where I underwent an Invasive Cervical Traction procedure which highlighted the fact that I had suffered a subtle ligamentous injury which had left me with Craniocervical Instability and that was causing many of my problems.  They immediately recommended 'Fixation Surgery' but I'm having a great deal of trouble getting anyone to actually carry out this procedure here in the UK.
Barbara

[Zak_Han]

if you can't get any help from the medical system,which means it's  serious. unfortuately,alternative med may be just little help.so ,I would strongly recommend that you see a local neurosurgeon quickly for a second opinion. Good luck!