If such intense type of treatment was given and still there is no relief, then we will not have much options.
Presently the best way out is to consult a pain and palliative clinic where they can guide her for a better pain relief.
I presume, all the factors which were thought to be a cause of pain (like Arnold chairi malformation / teethered cord syndrome/etc) have been addressed.
What's really disturbing me is the fact that the pain is re-occuring after 2 weeks.
We really need to have this consultation.The more we wait, the bad is for your daughter as she has already undergone such surgeries, but the end result was "No Pain relief".
I have got no idea about the doctors in US, but would request you to give a search for the effective and good "Pain clinic" as they can be of real good health.
Praying for your daughter's fast relief.
Please discuss, if you got any doubt.
The surgeon has told my daughter not to do any exercises yet. My daughter tried chiropractic a few years back and had her neck "cracked". However, she feels that all her problems manifested from that one treatment because she began having terrible pain from then on. I learned that a person with chiari malformation of the brain should never have their neck cracked so perhaps because of that it brought to light an underlying condition that was already there waiting to be exposed. AFter that any time a doctor would attempt to do anything to her neck by moving it in any position she would end up in the hospital with more overwhelming pain - so we're very cautious about doing anything like that at this point.
I will, however,look into the MedX for I have not heard of that. Thank you so much for your offering, though. Every little bit of help & information may bring us to some resolution. mb
Thank you also for your reply to me. Actually my daughter does have a pain management doctor. At this point the meds are not adequate to meet her needs and the doctor no longer sees her to check her progress. She hands out Rx's to patients in a "herding in and out" mode which is rather distasteful. My daughter is looking for a new pain specialist but it is hard to find one who treats with meds. My daughter is considering a pain pump but that is something she was really didn't want to do. It may be her only resort. We're praying much as are many other people. mb