I have having a dilemma regarding my treatment and it is advice from more experienced sufferers of bipolar disorder, or from other medical professionals, that I seek. First some background of my situation:
In May of 2006 I was diagnosed with Bipolar Type I after having a manic episode resulting from a combination of stress and marijuana abuse. I was sleepless for a week and neither me nor any of my friends (who were with me and helped me through it) knew anything of bipolar disorder or mania. As such no one knew what was happening to me. I did however recognize that I could not sleep and so read about sleep deprivation (surprisingly nothing linked to any information about bipolar disorder or mania, or perhaps I just missed such information) at which point I learned that after awhile hallucinations occur and eventually insanity. So when I eventually started hallucinating (only auditory and delusions of grandeur) I was prepared and was thankfully safe in my apartment with close friends. After almost a week of sleeplessness my thoughts were getting so distorted (not violent but I thought I was Jesus incarnate!) that I realized it was time to go to the hospital. We knew that insanity wasn't far away though no one knew exactly what that might entail, though I was about to find out. I won't go into details about what happened once in the ER but, after feigning sleep (in my psychosis I felt I had to) and subsequently being stripped naked and laid on the exam table, I went into a fully blown violent psychotic state. After many days of confused hospitalization I finally began to think rationally and had it explained what had happened and that I had this disorder.
I was then put on 15 mg of olanzapine (Zyprexa) and for 3 months I was alright. Then, in September, I went back to school and became very depressed at which point my doctor prescribed lamotrigine (Lamictal), which seemed to curb my depression. And so I was quite stable for nearly 10 months on the same 2 medications, during which time I graduated from college and got a full time job.
After getting said job in July my insurance information changed and I needed to find a new doctor. At the time I was busy with work and moving into a new apartment so I put off finding a new doctor. Because I was unable to see my old doctor he was unable (or unwilling) to continue to prescribe my medications and so, when they ran out in August, I simply ceased taking them. I experienced no withdrawal symptoms, which is surprising since I have been reading now that stopping both medications can cause them.
Very soon after I stopped taking the medications I actually felt much better, a better mood in general and more stable. The short periods of slight depression were gone and I found that I didn't need so much sleep (I could and would sleep 15 hours) and it was much easier to get myself out of bed in the morning (though still unpleasant as I have always been a night owl). So here I am 4 months later, still very stable and feeling better than I have since before I knew anything about bipolar disorder. I would like to say at this point that going off of my medication like that was careless at best and utterly foolish at worst and I would not necessarily recommend it to anybody without consulting your doctor. However I reasoned (perhaps falsely) that if depressive or manic symptoms returned it would take days of sleeplessness before developing psychosis and so I would have had time to seek emergency help. Furthermore my roommates/friends we fully aware of what was going on and so were able to monitor my behavior and report any strangeness.
That brings me to my present situation. Last week I finally had my first appointment with a new doctor and, after hearing all about my past and present situation, he prescribed ziprasidone (Geodon) and oxcarbazepine (Trileptal). I filled the prescription but do not know if I am going to begin taking them. My view is that if it isn't broken (not experiencing any mood swings or depressive/manic symptoms), don't try to fix it. I discussed this with him and he informed me that with bipolar disorder it is best to attempt to maintain stability throughout rather than medicating only from crisis to crisis. I didn't think of it when with the doctor but I have since wondered what is wrong with medicating only when needed (experiencing symptoms), especially if stability is maintained otherwise. After all one doesn't take antibiotics unless there is an infection present. (This may be a bad example as I know little about medicine)
I would like to mention here that I am not in denial about having this disorder given my family's history of mental illness, nor do I believe that I will never again have another episode with or without medication. I do however feel that I am now self-aware enough to recognize the signs of another episode very early and will not hesitate to seek help. I am merely questioning whether or not constant pharmaceutical treatment is necessary or even beneficial. I would generally prefer to not be on any medication unless it is necessary since it can produce side effects (I gained a lot of weight from olanzapine), imposes restrictions (like no alcohol, which I admittedly enjoy), is expensive even with insurance, and I feel better without it (though I have yet to try the newly prescribed medications).
Aside from that there are other things that encourage me to question my current treatment and which diminish my confidence in the psychiatric paradigm in general:
-After doing some reading it seems as though physicians and scientists are still very much in the dark about why and how these drugs work, only that they alleviate symptoms in certain patients.
-My present doctor prescribed totally different medications than my previous doctor and I think he mentioned that he never prescribes lamogtrigine despite the fact that it is the only drug besides lithium to be granted FDA approval for treatment of bipolar disorder. While I have no doubt that he has perfectly valid reasons for not prescribing that particular drug (likely his experiences with patients), it just seems like treatment is very much a matter of the doctor's personal preferences and biases. Perhaps it is just the nature of the beast at this point, but treatment seems very much a trial-and-error process rather than the exact science it is sometimes perceived to be.
-Drug companies, while definitely providing a great service to humanity, are after all large, profit-driven corporations who spend extremely large sums of money marketing their products to doctors and consumers (turn on the TV or look around any medical establishment at all the drug-branded office supplies). While some may think it paranoid, I can't help but wonder what influence these wealthy companies might have on the current methods of treatment.
I apologize for the length of this post but I just wanted to detail my exact situation in case anyone has had similar experiences. Any thoughts or advice would be greatly appreciated.