Hello Amoobaa, I read you comment and I see that we both have the same aches and pains in our joints and bones like sudden sharp stabbing pains daily and I also get dizzy when I stand up. I was recently diagnosed with Beta Thalassemia Minor. I have to take 50 grams of Folic Acid daily. Do you take any Iron or Folic Acid Supplements like me? How long have you been feeling the aches and pains and feeling dizzy; and when where you diagnosed?
And I also this you should check for Thyroid and Diabetes. I thing it is a great IDEA to forming a BTM awareness thing.
Thank you so much for your post! I do have thalessemia minor but my only concern is my rather high ferratin level. I do watch what i eat- so if i am eating foods high in iron, i will have dairy or black tea with the meal so it slows down the absorption of iron. Is this something that I need to worry about? I do look young for my age and now that you mentioned this trait, I now know which of my parents has this gene- my dad is 87 and looks much younger. Anyway, if you wish you can reply by email - belle.***@****. Thanks so much!
I agree...there definitely needs to be more research. I am beta minor and have had symptoms all of my life...both my sons are minor and they also exhibit the so called "asymptomatic" symptoms.
hi all I am on my third pregnancy and just found out I have BMT and supposedly graves disease. I love to sleep, I get pains in the center of my chest just about once a year, serious allergies from april to may beginning of June, migraines that are random and do not allow me to function. Im always cold and this last year suffer pain when my body touches anything cold especially my back. As most of us do I have discovered ways to cope with my different issues. But I always knew something wasnt right and the docs cant help me. Thats my issues but here is my solution! I did the daniel fast for 30days (not easy) but i felt amazing lots of energy! I maintain a vegetarian diet afterwords for 6mons felt good but nothing like that fast. I have since been on a quest to find a health natural way of life. I found yoga to be the greatest physical and mental fix. I found vitamins also help. I started selling them due to my personal response my whole family has benefited and i didn't even really notice my daughters eczema was non existent, a lump in my husbands hand went a way and my oldest daughter no longer looked sick. I am going back to my vitamins after this diagnosis and reading all comments here thank you all for the reassurance that i wasnt going crazy. I hope I can help all of you who are willing to try a different approach. My vitamins www.shop.com/gardners and I can be reach at ***@**** even if its just to chat and relate. Have faith and keep a positive attitude toward this thing called Life. much love Tannj
Heyyy,
I'm only 13 and I have the same problems at school. During winter we have 'Cross Country' which is where we have to run like 5 Kms but because of my Thalassemia I breath really loud like you haha and I also get dizzy, cold, out of breath, panting like a dog, and on one occasion I fainted... I also attend full day school and I have to get up at 6:45 am to get there on time and by the time I get home it's 4 pm :(. On weekdays I come home from school and have a 3 hour nap and then eat dinner, do my home work, music practice and shower and then I only get to sleep at about 11 pm. I am the music type unlike you and I have to be in 2 ensembles which one of them starts 7:15 in the morning which makes me so tired and fatigued. On weekends I barely go out anymore because I am so tired and feel unwell.
Hi,
Keep your head up :)
I'm only 13 and I have Beta-Thalassemia Minor and get horrible symptoms, you're not alone trust me. Don't be scared, you just need to know how to look after your self right. I only found out that I had BTM after getting a blood test this year, I thought that I was the only one at school who couldn't do the Cross Country run (I thought I was just so unfit) but it turned out that I was feeling faint, tired and short of breath etc. Don't think to much of it and just get on with your life!