Hi there and thanks so much for posting this interesting question!
Please be free to post the same question in the Neurological forum at this site if you are looking for a more detailed neurological assessment.
Yes sorry to hear your ordeal since I agree with you it is very frustrating to not know what is an accurate diagnose and according to medicine sometimes they "rule out" different conditions in order to get an approximate condition.
According to the Mayfield Clinic Chiari I malformation is a condition in which the bony space enclosing the lower part of the brain is smaller than normal. Crowding causes the cerebellar tonsils to push through the skull and down into the spinal canal.
According to the National Institute for Neurological disorders and stroke What are the symptoms of a Chiari malformation?
Individuals with CM may complain of neck pain, balance problems, muscle weakness, numbness or other abnormal feelings in the arms or legs, dizziness, vision problems, difficulty swallowing, ringing or buzzing in the ears, hearing loss, vomiting, insomnia, depression, or headache made worse by coughing or straining. Hand coordination and fine motor skills may be affected http://www.ninds.nih.gov/disorders/chiari/detail_chiari.htm
The symptoms you are describing although frustrating are considered normal and what you need to monitor if they are getting better or worse. As you may know the Cerebellum stores 50% of the total neurons in the brain affecting mainly motor functions such as balance, coordination, speech or timing. However, what we tend to forget is that the cerebellum communicates very powerfully with the frontal lobes through 40 millions of nerve fibers (40 times more than the optical nerve and frontal lobes) in addition vision is located in the back of the brain so If you have been removed a section there it may be affecting at the beginning some vision function.
I know that you are stressed about not knowing an accurate diagnose and treatment but i can sense from your words that stress may not helping you mitigate those symptoms, since stress and anxiety can trigger powerful mechanisms in the brain making the symptoms to never go away. What you should really be focusing if possible is the plasticity of the brain. Your brain will regenerate neural pathways, creating new connections, strengthening existing circuits and helping to balance chemicals.
My advise it would be:
-Follow your doctor recommendations.
-Ask for a second and third opinion
-Follow healthy lifestyle choices reducing stress and anxiety. How: Add meditation techniques: 3 times a day 10 minutes each time
-Follow these movements: 1. Raise opposite arm and leg raise for balance, coordination and motor planning (left vs right brain hemisphere) 10 times. 2. Start tapping your feet at the same time you are clapping. As fast as you can for fifteen seconds. 3. Balance: From a standing position, raise one leg and hold the position for ten seconds. The change legs. 4. Follow the previous exercise with the eyes closed. 5. FInalize with lower back and upper back stretch. Do it twice
Again I am providing alternative treatment for a better brain body performance and see if that helps you mitigate the uncomfortable symptoms. When you train the brain in different areas simultaneously not only affect to different brain areas but also different chemicals.
Make sure that before you do these exercises you consult your doctor and see if you re allowed to do them and again please be free to post the same question in the Neurological forum http://www.medhelp.org/posts/Neurology/neurology/show/629872?controller=posts&action=show&id=#%3CSubject
:0x000000218b0e68%3E at this site or at the Chiari forum http://www.medhelp.org/posts/Chiari-Malformation/To-The-Chiari-Forum/show/1178879?controller=posts&action=show&id=#%3CSubject
:0x00000027485400%3E if you are looking for a more detailed neurological assessment.
I hope this helps and let me know how you do!